In Terms of Pain

There’s a weird thing about relativity that goes on after watching a loved one suffer and then die from cancer: pretty much no ailment really seems all that bad.

When I start to think that I don’t feel well, my thoughts immediately go to the look on my dad’s face when he was so sick, the confusion in his eyes when he asked over and over “Why am I not getting better?” and the desperation in his voice when we brought him home from the hospital for the last time and he asked me, “Are you sure we have enough medicine?”  I feel certain that the emotional pain he was in and the stress he felt for so many reasons were worse than the physical pain towards the end; all of it was nothing short of torturous.

So these days when I think about something like pneumonia, I think: not that bad.  A bout of the flu?  You’ll get over it.  A migraine?  Take some medicine and quit your whining.  Throw your back out?  Give it a couple of days and it’ll be like it never happened.  Common cold?  Jesus, get ahold of yourself you freaking wimp.  These are not things I say to other people (not out loud, at least), but I definitely say them to myself, just one more way that my perspective has changed.

I remember both times my dad was in the hospital and the staff seemed to be constantly asking him to rate his pain. Every time he was asked, he was shown a little visual guide; it seemed to annoy him much more than it helped him.  He always did what I came to think of as "white coating" his response (sugar-coating for the white coats); the number that he gave and that was recorded in his medical chart was always lower than it actually seemed to be to those of us who spent a lot of time with him.  Many times Dad was very obviously in pain, grimacing and asking for a cold cloth to be placed on his head, and then when a health care worker walked into the room his demeanor shifted:  "How's it going, Doc?" or "I hope your shift ends soon - it seems like you've been here for days and I know you're tired!" he would say. Truth be told, sometimes it made me angry, not necessarily at him or at the staff member but just in general at the fact that he felt like he needed to pretend to feel better than he was actually feeling.

Several times I thought about following the nurse or whoever had asked him to rate his pain out into the hallway to ask them to put a footnote explanation alongside the number Dad had given, but for some reason I never actually did it.  What they didn't realize besides the fact that Dad tended to "round down" was that his natural pain tolerance was about 100 times that of most other people, the result of decades of enduring grueling athletic workouts.

I know it’s not a contest, and I know that pain is pain and sometimes it just helps to let out a moan or a cuss word in complaint of the discomfort that’s ailing a person.  But, like pretty much everything else in life, pain is linked to perspective.  I WISH I STILL THOUGHT A HANGNAIL or even a raging case of poison ivy was worthy of whining.

Lessons

Life, for the most part, is full of the mundane, the predictable, the obvious, the day-in/day-out routine.  We get up each morning, get dressed, eat breakfast, go to work or school, run errands, take care of the kids, make dinner, clean up, and go to bed.  Repeat.  It is easy to become complacent, to take it for granted, and even to sometimes complain about the little things without realizing what a blessing things around us really are.

And then, in the blink of an eye, everything changes.  We are jolted out of our reverie, forced to refocus and to reevaluate pretty much everything.  And even as much as we might wish that things would go back to the way they were, things are changed.  We are changed.  And, for better or for worse, so is our perspective.

In a way, the holiday season was part of the repeating loop for me over the years.  Certainly the joy and the excitement were there, especially seeing the wonder and the happiness in the faces of the children in the family.  Looking back from this vantage point, though, I can see that I spent too much time worrying leading up to and during the holiday season each year.  I worried about when and how the Christmas decorations got put up, I worried about having the “perfect” gift for everyone on my list, I worried about what I would prepare for holiday get-togethers, I worried about getting a photo for the annual Christmas card and getting the cards addressed and mailed out in a timely manner, and I worried about making sure that my kids had an action-packed, memorable (at least what I thought was memorable at the time) holiday season.  A lot of the stress I felt during the season was admittedly self-inflicted.  And, as I see it now, a lot of it was unnecessary and unproductive. 

 As I got out the Christmas decorations this year, I thought about years past when I did the same thing and I thought about when my dad was sick.  The hustle and bustle was still present that year - it was just focused on a different set of priorities.  My kids did most of the decorating at my house that year; I was out of town helping to care for my dad a good bit during that the time.  I did 100% of my Christmas shopping online, much of it late at night in between conversations with Dad.  Some of the gifts did not get wrapped, and a few even got left behind in the transport between my house and my parents’ house, where my extended family gathered on Christmas Eve and Christmas Day, taking shifts being with Dad who was in the hospital in the ICU at that point. 

I will never forget how awful it was being in the hospital that Christmas.  The hospital cafeteria closed after lunch on Christmas Eve, and families of patients in the hospital had to fend for themselves for food for the next day and a half after that.  The roads were icy and travel was precarious, and everyone in my family was so, so sleep deprived and concerned about Dad and about each other.  None of us cared about opening gifts or celebrating; the only thing we really wanted to do was to spend time together and to do whatever we could to try to help Dad.

I thought about that a lot as I lifted each string of lights and each ornament out of the boxes again this year, and here’s what I realized:  As tough as things were that Christmas, not for one second did any of us lose sight of the value of being there together.  No one in the family ever said anything like this isn't fair or I'd rather be somewhere else or doing something else.  Together we struggled through my dad’s illness and death and together we have struggled through the grief since then, the day-to-day routines as well as the holidays that have come since then now colored in a very different way.  The lessons I learned from all that we went through that holiday season are things that I am certain will never leave me – things like how it’s more important to focus on the joy and togetherness of today than to worry about the details of tomorrow, especially when much of tomorrow is out of our control.  Like how it’s important to ask for help when help is needed and how stuff is just stuff.  Like how when one of us is sad or exhausted or discouraged or sick or hurt, we are strong as a whole.  And like how, even in the midst of the everyday, it's possible for perspective to reflect the riches that we are fortunate enough to hold in the moment.

What's in a Name?

I read an article recently about how stressful some people think it is to choose a name for their child: 

"The New Baby Name Anxiety"

Like a lot of things, though, I think the way a person feels about that process really comes down to perspective.

Personally, I considered it an honor to be in a position, along with my husband, to choose a name for both of my children. When I was pregnant with my first child, I read somewhere that it can put a person in a "position of power" to have a name that follows this rule: the last syllable of the first name should start with the same sound as the first syllable of the last name.  That sounds complicated, but it really isn't; an example of this is Stephanie Nelson - the last syllable of "Stephanie" starts with an "n" sound, and so does the first syllable of the last name.  

Obviously, if someone uses a nickname and/or if a woman marries and takes her husband's surname, that pattern may not hold as intended.  I named both of my children with that guideline in mind, anyway, though.  Of course, whether or not that rule is true is really just conjecture anyway.  Who really knows what's in a name??  

Whether or not name selection seems overwhelming can depend on how the parents-to-be view things.  While I think there are definitely some names out there that are a little "out there," it's possible that some people put too much thought into what names are too trendy or popular.  When my sister Jennifer was in the second grade, there were three other girls also named "Jennifer" in her homeroom, which was obviously confusing for everyone involved.  The teacher told the Jennifers to work out what each of them would be called so that there wouldn't be any mix-ups, and one of them right away called dibs on "Jennifer."  Another said she liked to be called "Jenn" and the third one quickly chimed in that she could go by "Jenny," which left my sister as the lone non-nicknamed student.  It was a Friday, and the teacher sent her home to think about it for the weekend, as if it was a homework assignment ... or a punishment.  

My sister didn't seem to mind, though; she announced to my family that she needed a nickname and it couldn't "Jenn" or "Jenny."

"How about 'JB,' for your initials?" Dad suggested.  "OK," she agreed, and that was that.  

Except for some reason I felt the need to have some input into the situation.  Later that weekend, the newly coined "JB" and I were floating around in a swimming pool, just the two of us, and I told her that I wasn't going to call her by that nickname.  "I'll either call you 'J' or 'B,' whichever you prefer," I told her.  "I'll take 'J,'" she said, and thus her family nickname was born.

When my sister Nancy and her husband were trying to choose a name for their baby during her pregnancy, lots of different name combinations were considered.  They did not find out the gender of the baby while Nancy was pregnant, which afforded us an opportunity to chime in on ideas for names of both genders.  In no uncertain terms, there were lots of cooks in the kitchen for that project.  The girl name was easier, because Nancy had had a favorite girl name since childhood.  But the boy name was open to all kinds of possibilities.  By the baby's due date, the parents-to-be had narrowed it down to three boy name possibilities, and then, two days later when Nancy went into labor, they announced that they had shortened the "in case of boy" list to two.  A few hours later, with all of us there and with the baby's arrival getting very close, they were still discussing which boy name they preferred.  Finally, less than an hour before the baby was in Nancy's arms for the first time, she and David came up with a plan: when the baby was born, if it was a boy, they would wait to see with which hand he reached out first - if left, the name would be one of the two choices, and if right, the name would be the other.  Fast-forward to "it's a boy!" and the moment of decision - and it was the right-hand reach that won out, with the newest addition to our family essentially choosing his own name, Crosby.

The Smell of Colors

I once worked with a child who said that he could smell colors; I was intrigued by his claim and asked him to tell me more about it – how he’d first noticed it (“I just did,” he said) and what each color smelled like to him (interestingly, I thought, white smelled like flowers, whereas I thought it would smell like the “fresh cotton” scent of an air freshener).  Some of the other people who worked with this child seemed to think his behavior was bizarre, but I thought it was fascinating.

Obviously I can’t tell other people how a certain color smells, but what I can do is to describe what certain emotions sound like. 

On the first night after we’d gotten to Durham when we took my dad to the Brain Tumor Clinic at Duke, my sister Jennifer and I lied down to try to sleep on the pull-out couch in the little room that adjoined with the bedroom where my parents were. Dad, who was both exhausted and wound up from the very long, tedious drive there that day and somewhat disoriented about what was going to happen the following day, had finally gotten to sleep, and Jennifer and I had only then realized that all of the pillows and blankets were in the closet of the bedroom.  We didn’t dare go in there for fear of waking Dad up.  We lay there on the thin, spring-violated mattress with a threadbare sheet over us, without pillows for our heads, and suddenly we both started laughing.  Punch-drunk is what I guess it’s called: laughing when essentially nothing is funny - out of fatigue so thick we could hardly think – and stress and terror and so many more things that felt so much more powerful than we were at that moment in time.  We had to keep shushing each other until we finally giggled ourselves to sleep that night, with the laughter somehow helping us to steel ourselves for the next day, which was both Jennifer’s birthday and the first day Dad got chemo.

The metaphor that comes to mind most often when I think about my emotional state during the time Dad was sick is a glass that’s completely full: whenever anything additional was added to what was already in there, the overflow was out of my control, and I was completely incapable of handling it.  One of the many things that happened during those ten weeks that threatened to put me over the edge was the car trouble that mysteriously started happening just after Dad’s diagnosis.  Just days after his surgery, I remember hearing a faint buzzing noise coming from under the car hood after I'd parked and taken the key out of the ignition.  My husband checked it out and said that it seemed like the battery was still running, despite the fact that the car wasn’t.  He took it to the repair shop, but they couldn’t get the problem to reoccur while it was there.  It didn’t happen again for about a week; the next time I heard the buzzing noise, I was in the parking lot at the rehab hospital, about to go inside and take an overnight shift with Dad. 

I was torn; I needed the car because I had to drive back home to go to work the next day, but I needed to be with Dad.  In a move that seems totally uncharacteristic for me, I threw caution not just to the wind but completely into outer space and left the car – and the buzzing – in the parking lot and went into the hospital.  Since my dad’s diagnosis, my priorities had never been clearer.

The next day when I went outside to the parking lot after Mom had come back to be with Dad, I unlocked my car door and tried to start the engine.  Nothing.  The battery was obviously dead.  Luckily for me, my aunt, who was at the hospital too, offered to help; we called AAA and they sent a repair guy to check it out.  He replaced the battery, and, when the same incessant buzzing sound started up again as soon as he connected the new one, he told me to get the problem checked out to be sure it wouldn’t happen again.  I took the car straight to the dealership near the hospital, but they couldn’t find a problem; they said they’d disconnected and then reconnected the battery and the buzzing noise had stopped. 

Looking back and remembering the amount of stress I was under at the time, I’m a little surprised that I didn’t just tell the people at the dealership to keep the old car and bring out a new one for me; having to deal with car trouble on top of everything else was definitely an overflow of the stress with which I was equipped to cope.  Instead, though, I drove the three hours home and told my husband what had happened (again), and he showed me how to disconnect the battery under my hood and gave me a yellow-handled wrench to keep in the side pocket of my car door, just in case. 

Just in case was a language in which I was fluent by that time.  I’ve always felt the need to have plans and back-up plans, and, since Dad had gotten sick and had begun to need around-the-clock care, I knew that careful strategies and consideration of all the variables was essential to my entire family.  Having to tote a yellow-handled wrench around did not at all – pun intended – put a wrench in the plans we had laid.

A couple of days later I drove back to where my parents lived and parked my car in front of their house.  I heard the buzzing again after I’d turned off the engine, and I inexpertly used the wrench to disconnect the battery. I became much smoother at the process over the next couple of weeks, even performing the procedure later in snow and in the dark.  On the day when I was driving home from my parents’ house on icy roads and had to turn back due to the route being impassable, I pulled up in my parents’ driveway, stepped out of the car, and heard the buzzing again.  In the snow and ice, I hurriedly used the wrench to disconnect the battery and then closed the hood of the car and went inside, wet from the snow and shaken from the precariousness of the road conditions.  Dad, who was sitting in his red leather recliner chair in the den, looked up from reading the newspaper when I walked in and noticed the wrench that I’d forgotten to put back in the car in my hand.  When he asked and then I explained why I’d needed the tool, he laughed and said, “Well, if the whole OT thing doesn’t work out for you, I guess you could always be a mechanic.”

When Dad was in the hospital the last time and my family was having to deal with getting to and from the hospital on icy roads at all hours of the day and night, I got so adept at disconnecting and reconnecting the battery that I could do it in the hospital garage in under ten seconds each time.  I ignored the stares of the people around me in the garage and declined the help of the security guard who saw me with the yellow-handled wrench and my car hood propped open.  The battery hookup/unhook became part of my commute routine, just like defrosting the windows and driving through Sonic on the way to the hospital to get Dad a Diet Coke.

I still sometimes think about the boy who said he could identify colors by their smell, and it makes me think that maybe part of the reason I made it through the difficulty of the time when my dad was sick and since then is that I somehow recognized that, because my family is lucky, we had the sound of laughter to remind us of the love and hope and devotion we shared even through the most challenging times.

Father's Day 2013

This one's not the first Father's Day I've spent with my dad, but it's hitting me hard anyway.  There is so much stress and turmoil going on in my life these days related to my job that I don't feel like I am in "top shape" when it comes to being prepared to cope with the grief that still so often catches me by surprise, either with its timing or its intensity or both.

I looked through some old pictures today and found so many of my dad doing things he loved to do, whether it was sitting in a lawn chair in the sun reading the paper, running, sitting on the beach, or spending time with his family.  In all of them, he looks happy and healthy and as if he is perfectly content, and for that I am so grateful, except for a song that keep playing in my head:

CLICK HERE TO LISTEN TO THAT SONG ...

Today I found myself thinking about how on the day after my dad had died, I stood in the shower in the guest bathroom of my parents' house, crying and crying, feeling so much like my heart was breaking that I thought I needed to hold my hand over my chest to keep it together.  Never had I imagined - or even thought to imagine - that a day like that day was coming, or like the days like the ones I figured were still to come.  I had no idea how I was going to get through even that first day without my dad there physically with me, much less through the rest of my life.  I felt like I was falling down a well in slow motion, and I knew that at some point I would seriously need to reconsider my world view and, in essence, myself.

So many times, I've thought back to the last night that my dad was in the hospital and to the way that he insisted on having all the lights turned out and for Jennifer and me to be on either side of him as he tried and tried to sleep.  I remember how he reached out in the darkness to grab my hand and Jennifer's without even looking, and, recognizing the trust, the love, and the vulnerability in that move, I quietly started to cry there beside him in the dark; I was so grateful that he was so sure that we were right there with him.    

What I wouldn't give for just one more day with him.  I wouldn't even care what we did together; I just have so much to tell him and to talk to him about.  It's like I'm the one now reaching out into the dark to grab a hand to hold, and I'm so grateful that I have people who love me (and tolerate me) enough to serve that purpose, but it's still something that's so much tougher that I could have ever imagined.

Happy Father's Day to the man who was the perfect father for me.
I miss you and love you more than I can adequately express.

How It Feels

I didn't go into politics - or even business, for that matter - for a reason; one that, if you know me, you probably already know: I do not have a poker face.  I am not at all good at, as they say on Saturday Night Live, strategery.  I don't like office gossip or sneakiness or favorite-playing.  The way I prefer things to be in my work place is when, as my dad used to say, it is what it is - because what else would it be??

Unfortunately for me and for a whole lot of other people who live and/or work in the same school district I do, though, we have been involuntarily drawn into a situation over the past couple of years that has come to involve a lot of the undesirable aforementioned things.

As a result of the citizens of the city voting to give up their school district and the resulting imposed adoption of that system by the county school system, people in my area are talking about budgets and politics and outsourcing and other things that have regrettably become a very large part of the equation in public education.  One thing I haven't heard much talk about in meetings or in the media, though, is how it feels to have been swept into this maelstrom.

This has been the most difficult, most stressful year of my nineteen-year long career with the county school district.  I am proud of the efforts of many of my coworkers as we've entered into what can only accurately be described as a battle.  At times, I've felt sure that I want to do everything in my power to stay with the district, to continue the work I've started, and to try to control what I can in hopes of protecting my coworkers and friends - and ultimately, the students.  But, at other times, increasingly as the actual date of the change approaches, I feel as if I am in danger of going down with the ship.  Like a lot of my coworkers, my health and my personal life - and my overall happiness - have suffered a lot during this past school year because of the impending "merger" - a term, by the way, that really gets to a lot of us on the receiving end of the punches.  To merge means to join forces, to unite, or to team up, and to me that implies that an action is taking place between two roughly equal bodies, a situation which, in my opinion, this is not.  Always a fan of running metaphors, I liken what's going on here to a runner that has dropped out of a race who later asks an accomplished runner if he can train with the better runner.  One of them needs improvement; one doesn't.  One needs help; the other was fine on his own - and, in fact, is likely to be slowed down if the less skilled runner joins him on training runs, even though the faster runner may still be willing to take on the job of coaching the slower one.  It isn't a merger; it's more of an adoption.

In the district of people who did not get a vote in this decision, our leaders and our administrators are scared for their own jobs, for their livelihood actually, and it feels like there's an "every-man-for-himself" mentality that I have never before felt in this job.  Watching the process unfold in slow motion over the course of this school year has felt a bit like Chinese water torture, and in many ways I am glad to see the year come to a close, although I feel a distinct sadness at the same time that my job and this school system - both things that I have loved and have put my heart into since I was 25 years old - will certainly never be the same after end of this school year.  

Everybody knows that educators in this country generally don't make a lot of money.  They don't win Oscars or Pulitzer Prizes or get big raises or promotions or even get much recognition by their bosses or their "customers," unless, of course, a scandal of some sort is featured in the media.  The rewards we get come quietly and often only if we are looking hard for them, but most of us are lucky (and diligent) enough to see them, and we are glad to have this as our chosen career.  We realize that there is no other profession that would allow us to have such a part in shaping the minds of children in this way and to impact their future on such a personal level.  Teaching is about so much more than teaching - and I don't mean politics and jerrymandering and elbow-rubbing; it's about the power of relationships.  It's about the connection that can be made between one person and another person or between a person and a lesson, a link that can only be developed when the learner knows that the teacher cares about him or her.  When a mutual respect has formed between the teacher and the student, that's when the best kind of learning occurs.

But in an environment when educators are scared for their jobs, when school staff members know that they and/or their coworkers and friends may end up on the chopping block at any moment, when program cuts aren't a "maybe" but a "when," it's hard to be positive every day.  It's hard to focus on the lessons that need to be taught - and on the children who are the most important part of the equation.  From either side of the argument about what's fair or who deserves what from the limited funding available in the district now, one thing is for sure: teaching and learning have been hindered, and that doesn't feel good to any of us.

This is mostly a blog about grief and perspective, but I guess it's also about enduring and overcoming life's challenges, and I guess that's what has to be done in this situation as well.