The Wilderness of Grief

On this day four years ago, I watched one of the best people I have known take his very last breath.  I held my dad’s hand, kissed his cheek, and with tears rolling down my face told him I love him for the very last time.  It was a day at the end of a lot of days that I will never forget, and it was the beginning of an endeavor of a difficulty level that I could not have imagined – and one for which I could never have adequately prepared.

 I’m not sure if I knew it when I spoke the last words I would ever have the chance to say to him, but I told my dad something that day that wasn’t the truth: I told him that I would be ok without him.  I had to say it; I knew that I needed to let him go on ahead with as much peace as I could offer him after all that he had been through.  But, even four years later … I can’t honestly say that I’m ok, at least not as I used to think of as ok.  I’m different, in many ways, and I guess there is some ok in that.  The anguish of missing him every day and of knowing that he wanted to stay here on this earth with us so damn bad, along with the things that my family and I learned during his illness have transformed me forever, for sure.

Grieving in our culture is often very hard: people seem to expect – and to want – those who are in mourning to be ok.  Messages like “Be strong!” and “He would want you to be happy” are the standard, and that is one of the things that makes grieving feel like swimming upstream. 

I remember talking to a friend whose dad had died many years before not long after my dad died.  She was still really grieving, she told me, and I was stunned.  How conveniently naïve I was, about grief and about a lot of things, before the lines were blurred.  Sometimes, when I think about my dad’s going on ahead, about not having him with us here on this earth anymore, my breath catches in my throat and I think, "I am not ready for this."  I know now that, like my friend and like so many others who have walked this path, I will never be really done grieving … and I think that’s the ok that I am left with.

                                                        I miss you, Dad//

A Changed Form

It’s difficult to know what to do or say or even think on a day like today; how does one mark a milestone that they wish didn’t have to be?

Today marks three years since my dad went on ahead.  Three years – that seems so unbelievable.  There has been so much pain, and mourning, and missing him in that time.  There has been a lot of change, too, some for the better and some, well, probably not so much. 

Here's what I am working on at this point: living - and thinking - so as not to allow cancer or sadness or grief to rob me or my family of anything more.  Because what I have learned in this past year is that it's so important to see the good in the moments, even when the grief makes things look blurry. What I have been working on since I sat in this same place a year ago is finding ways to make sure I don't miss the good, the happy, the important moments, even as much as I miss my dad.

It would be so easy to fall into the habit of viewing things as a misfortune, an unfairness, or even a disaster; one thing I've learned for sure since my dad died is that getting a foothold on perspective doesn't always come naturally - it often takes work and effort.  For me, at this point, there are times when the grief is still really thick, but I can tell that it has changed form. I think so often that Dad would be shocked and probably even more disappointed than touched that there are those of us who are still so much in mourning; I know he would want those of us he loved and cared for to be happy. That thought pushes me to try to do better, to be better, to do my best, just as my dad pushed me to do so when he was physically on this earth.

And so, through effort and dedication, I continue to be transformed as time marches on, and so does my grief. Instead of leading me as it has, the grief mostly seems to accompany me these days, still present but in a changed form.  I find myself sometimes having to reach to feel him around me lately, which brings about a new type of fear and a new form of heartbreak.  I am able to say that I am happy and grateful in the midst of it all, though, even though when the tears and anger come as they still sometimes do, I miss Life for him - and I miss him more than I ever thought possible.

Brave and Important

I mentioned in the last entry that one of the things I've been doing to help me through my own grief is reading books and blogs of others who are also struggling with the difficult work of grief.

Here's a link to a blog that I started reading about the time my nephew was born last spring; in fact, I got the idea for making the video of photos from my sister's pregnancy and from the birth of my nephew from this site.  The story of the family that's detailed in the blog is sad but so touching and inspiring:

                                 Chasing Rainbows

I started reading the "Darcy Claire" part first - but it will make more sense if you click on each of the children's names across the top of the home page in order from left to right (that's their birth order), Gavin then Brian then Darcy Claire. When you get to the Darcy Claire part, have some tissues ready and be sure to watch the video (the link is at the bottom of the entry when you click on her name).

When you've read that, find the Blog Archive list on the right-hand side and click on "2013" and then "April" - that's what was happening in real-time just after I started following the blog, and it's very dramatic.  Start reading at the entry from April 2013 entitled "A Piece of Pop" and follow it from there - you won't believe what happens as the story continues to unfold.  

Be sure to read the entry called "Without Ever Uttering A Word;" it's touching beyond description.  It makes me think of the many kids I've gotten to know through my job as an occupational therapist who aren't able to communicate verbally and who've made such an impression on me through the years.  And be sure to read the one entitled "The End;" it's potentially the most powerful blog entry I've ever read.

Some of the things that have struck me in particular as I've read the entries (and from watching the Darcy video) are how touching it is how Kate (the mom) never seems to mind having her picture taken, even in the midst of tragedy, how she repeatedly says she feels "privileged" even in the midst of what must have felt like excruciatingly hard waiting, and how she seems to need to do something to try to help herself through her grief, even as the tragedy unfolds. Some of the stuff she writes about how hard it is to function at all in a state of grief reminds me of how I felt like I was that first year after my dad went on ahead, struggling just to get supper on the table or to pay a bill or help my kids with homework.  I admire Kate's writing because, while she's hopeful and that fact shines through almost everything she writes, she doesn't sugarcoat some of the ugly of grief, and I think that's brave and important.

From This Vantage Point

During the ten weeks that my dad was sick, whenever I heard someone use the phrase "at least" in reference to my dad's illness, my gut burned with fury.  I didn't want any at-leasts, or rather I didn't want to have to have any.  I wanted my family to go back to the way it was, and, as I tearfully texted my husband late in the night after we brought Dad home from the Brain Tumor Clinic at Duke, I wanted my dad back.  It seems selfish and childish to me now, but I was in a state of shock and disbelief that that changes that had occurred in such a relatively short period of time had happened.  The doctors at Duke had promised us that the treatment Dad had gotten just after his appointment there was like "magic;" they told us that within 24 hours of getting the medicine we would notice an improvement.  Instead, though, probably due to the toll the stress of the trip had taken on him, he seemed worse.  To me, there certainly didn't seem to be any at-leasts in the picture at the time.

Dad, competing in a half-Ironman triathlon just weeks before his diagnosis

The at-leasts poured in from seemingly everywhere while he was sick and for awhile after he went on ahead; I realized even on my worst days of rage and despair that everyone who said those words did so in an effort to help: "at least he had his family around him the whole time he was sick;" "at least he had good insurance;" "at least you got to spend those extra weeks with him;" and then, the hardest to swallow, "at least you were with him when he died."  We even got a few at-leasts that weren't true ("at least he didn't suffer" being the most blaring untruth).  People were just trying to help, I told myself then and in the months that followed.  I knew it was true; I just hated that I was suddenly on the receiving end of such a phrase. Just having part of what I had or should have had didn't seem good enough.

The flag at half-mast at the cemetery on the day of dad's burial

Over the past six months or so, though, I've been thinking more about those at-leasts, and I've started to see them a little bit differently.  Don't get me wrong: I still long for the whole; it's just that I'm starting to see the value in the in between.

I think the change has come from my reading about the struggles of others - their challenges, illnesses, and grief mostly - and seeing that the people who seem to come out ok (that is, those who don't end up with a completely bitter outlook on life, one that seems so damn disrespectful to the people in their lives including, in the stories of grief, the person for whom they are grieving) are the ones who lean at least a little bit into the at-leasts.  

My dad wasn't a big believer in thinking about Worst Case Scenario; although he like to plan ahead, he frequently said that he thought worrying was a waste of time.  I'm actually not sure what he thought about at-leasts, if he thought about them at all.  I know he was a positive thinker, though, and I can see now that at-leasts fit into to that way of thinking, which is further evidence that it's not a bad idea for me to reconsider my view on that point of reference.

From this vantage point on the road of grief, I can see the value of at-leasts.  Saying "at least" in reference to one's own troubles is a way of keeping perspective; it's a way of reminding ourselves that, while we are powerless to change certain situations and to stop certain things from going wrong, we have a choice in how we view things, even (and maybe especially) in the midst of tragedy and hardship.

And so I have changed my opinion on at-leasts: I believe in the goodness of at-leasts and of positive attitudes; I believe that each of us has the power to take tough circumstances and bad breaks and find the good in those situations.  And that, more than anything, is what gets me through the day now.

The Hitchhiker, Part 1: The Gift of the Story

As I have learned since my dad went on ahead, one of the greatest gifts that can be given to someone in grief is talking to him or her about their loved one: telling a story that involves the person who has died, sharing something you remember about that person, or talking about a quality that person had or a deed he did that you appreciated can be a priceless treasure.  It doesn't have to be a significant account; sometimes something funny or unique that person did is just what the person who is grieving needs to hear.

Not long after my dad died, my mom, my husband, and I went to the Mid-South Grain Association meeting in New Orleans, or simply "Mid-South," as my dad called it in general conversation.  Dad was in charge of organizing the convention there every February, and we went after he died to represent him in a way.  My mom kept up with the administrative duties that she had assisted Dad with for many years, but, as I came to find out, it was as helpful for us to be there amongst many people who had known Dad for years - some for decades - as it was for them to have Mom filling in at the registration desk.

The highlight of the trip for me was listening to one of my dad's long-time friends and previous coworker talk about some of Dad's antics from "back in the day."  Some of the tales I had heard before, mostly from Dad himself, but others I had never heard, and I felt comforted by all of them; it felt almost as if I was getting a piece of my dad back for just a little while.

Like a lot of people, Dad was a work hard/play hard kind of guy.   But the thing that I think made him unique in that area - at least from what I have gathered from seeing him interact with people professionally and from listening to what others have said about him in a business context over the years - is that he was often able to make the work environment fun for himself and for others.  For starters, he never hesitated to laugh at himself, and his interest in everyone around him was genuine.  Never did he miss an opportunity to say hello to or to compliment or express interest in someone else; the way he assumed that pretty much everybody had good intentions somehow seemed to result in that becoming a self-fulfilling prophecy.  He delighted in clowning around when time and the situation allowed; I don't know that he learned about the benefits of fostering a positive work environment in a formal setting, but he certainly applied the principles all the same and always seemed very popular with his employees because of it.

"Cotton Row" on Front Street in Memphis, Tennessee

Here's the story that my dad's friend told us from back in the early 70's, when my dad worked at a company with an office that was located in downtown Memphis:

One Friday, some of Dad's clients had come to Memphis from out of state, and he was in charge of entertaining them that night.  My mom had driven with my sisters and me to her parents' in Nashville for the weekend, and Dad was planning to drive to meet us there late that night after he had taken the customers out on the town.  He worked until closing time and then met them at a restaurant down the street from his office.  As the story goes, the dinner turned into more of a party than Dad had expected, and when it was over he returned to the office since he had parked nearby.  Evidently, he was trying to ward off the headache he thought he'd be getting the next morning and so he walked over to his desk to get to his bottle of aspirin.  Unfortunately, though, the floors were in the process of being redone, and Dad left footprints on the adhesive backing that had been laid down in preparation for the tile that was going to be installed the next day.  Apparently there was much laughter the next morning and later some friendly ribbing about the fact that everyone could tell who the culprit had been since the tracks lead straight to his desk, where several aspirin tablets were spilled on the desk, and then back to the exit door.  

As Dad himself later told the story to his friends and coworkers, after he'd gotten into his car and then started driving on the interstate headed towards Nashville, he realized that he'd had too much to drink to be driving.  As luck would have it, soon after that he saw a hitchhiker on the side of the road. Necessity being the mother of invention (and of innovation), Dad pulled over and rolled down the passenger-side window to ask the guy if he could drive and where he was trying to go.  "Sure, I can drive," the guy said, and then he added, "I'm hoping to get to Nashville tonight."

"Well, get in, then," Dad told him, probably smiling from ear to ear and thinking he had struck gold. "I'll be asleep in the back; wake me up when we get there!"

I doubt he told my mom about the details of that trip for quite some time after it happened, and it wasn't until after his death that my sisters and I heard the story.  I could picture it happening though, and hearing the tale was a much-appreciated gift, one that I will always treasure.  And it wasn't Dad's last interaction with a hitchhiker either, ...

To be continued ... 

Memories on April Fool's Day

Twenty years ago today, my then-fiance and I went to the County Courthouse during our lunch break and got our marriage license.  We had intentionally planned to get our license that day: I've always loved April Fool's Day - even if I don't have a good idea or an opportunity to pull a prank on someone, I love the idea that I COULD - and also it was the only day that we could coordinate our schedules to make it downtown during business hours before our wedding date less than three weeks later.  

It's a good thing we did it that day, because, as it turned out, on April 2, the next day, my grandmother died.  

My maternal grandmother was the grandparent to whom I was the closest at the time; I saw or tried to see some of myself in her - or I guess I should say I tried to see some of her in me.  Anyway, even though she had been sick for awhile as she struggled through a relapse of breast cancer, I was shocked by the news.  I was grateful that my grandmother had hung on long enough to meet my husband-to-be and to hear about my wedding plans - and most importantly to meet her youngest grandchild, whom she held in her arms not long before she went on ahead, but I was so saddened by the loss that I could hardly put one foot in front of the other.  It was the first death that I had experienced of someone to whom I was close, and I was at a loss of how to even try to cope.  

Needless to say, the next few days were a blur as we made our way to the city where she lived and gathered together as an extended family to pay our respects.  I remember that I didn't think I would be able to sit through the service in the church without bolting for the door because I was afraid my cries would be too loud.  I remember hardly being able to bear the pain of looking at my mom, at my two aunts - one of whom had a two year-old and a two-week-old baby - and most especially at my grandfather, whose sky-blue eyes held such endless sadness that there seemed to be no possibility of ever being able to comfort him.  I remember that I stood with one of my cousins and my fiance long after the rest of the people had gone back to their cars at the cemetery; the funeral director had dismissed us after they'd lowered the casket into the ground, but I just couldn't bring myself to walk away before I'd seen her body buried, one final thing I felt I could do, if not for her than in her honor.  We stood there by the headstones of the other graves around her plot, and I looked for four-leaf clovers while the dirt was placed over her beautiful silver casket, adorned with beautiful tiny daisies.  I remember that I was a little bit comforted by wearing one of my grandmother's sweaters to the funeral; it was the only thing I had of hers besides the opal ring she had given me - "October birthday girl to October birthday girl,"she'd said - when I celebrated my sixteenth birthday.  Years later, I pulled that sweater from the back of my closet and wore it to the funeral of a friend, and in the pocket I found the handkerchief that my dad had given to me at my grandmother's funeral, a reminder of both the tears I had shed and of the love my family shared as we tried to support each other through those rough days.  

I knew my grandmother well enough to know that she would absolutely have wanted "the show to go on," and so, just a couple of weeks after we laid her to rest, my dad walked me down the aisle and I said "I do" to my new husband in front of many of our family and friends, at sunset on the banks of the Mississippi River.  I wore the gerber daisy wrist corsage that was intended for my grandmother during the ceremony; I felt my her absence profoundly that day as I have many days since. 

Wearing the corsage meant for my grandmother

Today, when I think back on that April Fool's Day at the Courthouse, to the days afterwards leading up to the wedding, and to the wedding itself, so many emotions run through me.  I feel lucky, I feel loved, I feel happy for what I have learned and shared and survived.  Twenty years, wow.  Pretty incredible.

My grandfather, at my wedding, just two weeks after he'd lost his wife.
"I'm here for two," he said, and I knew just what he meant.