Priceless Memories

Eight years ago, my sisters, our husbands, and our children traveled from our corners of the country to meet at my grandmother's house in Alabama.  The day after we had arrived, our group of eleven piled into cars and drove across the state line to Wild Animal Safari in Pine Mountain, Georgia.

When we got there, we found out that there were 15-passenger vans available for rent to drive through the park - and the vans were zebra-striped!  We knew it would be much more fun for all of us to be together in one vehicle to travel amongst the animals who roamed free over the many acres there.  We paid the admission and the rental fee and then headed towards our Zebra Van; as we were boarding, my brother-in-law Peter walked over carrying a giant bag of animal feed.  He said it was a better deal to buy in bulk instead of purchasing individual containers of food for each of us to feed to the animals in the park.  I will never forget the look of wonder on Grandmom's face when she saw Peter carrying that huge bag; she laughed excitedly as she took her seat in the van and then said, "The animals sure are going to LOVE us!"  

Somehow it worked out so that my brother-in-law David took the wheel in the van - some of the time with my niece Daly on his lap - and with my daughter Molly in the passenger seat in front.  The rest of us sat on the bench seats in the back with our windows rolled down, ready to feed the animals as David slowly drove along the gravel road, stopping frequently as wildlife approached the van.  

There was a great variety of animals in the park, from antelopes to zebras.  We all had a blast, including and maybe especially Grandmom, who smiled ear-to-ear the whole time that we were there and laughed hysterically when a big slobbery bison leaned in through the window and tried to lick her in the face!

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We had such a good time there that day that a couple of years later my husband, my daughters, and I went back to the park with Grandmom.  The second time, when it was just the five of us, she was moving much more slowly than the first, and we just drove through the park in our car since we were a much smaller group.  After we had driven through the safari part of the park on our return trip, we went in the gift shop.  Grandmom, who, as I've mentioned, lived on a very tight budget, thanked us for taking her and for paying for her admission, and then she said she wanted to buy a souvenir for us to take home.  Always the practical thinker, she picked out a pair of salad tongs with a zebra carved into the handle of each one.  When she gave them to me after she had paid at the counter, I noticed the price tag said $19.99.  That was a lot of money for a person of her income to spend on a non-necessity, I knew, and she knew that I knew it.  I looked at her, thinking that I should decline the gift and try to get her to return it, but then she said, "Thinking I was going to be able to take a vacation somewhere this summer, I had some money saved. Today has been as good as any vacation, and I don't need anything else, so please accept my gift."  

The zebra salad-tongs, today

A few weeks before, Grandmom had stepped into a hole in her backyard while hanging clothes on her clothesline and had broken her leg.  My dad had tried for years to get her to let him buy her a dryer, but she insisted that it was a waste of money and she didn't need it.  After all, she said, she had raised a family and had lived without one for eighty years, and who could argue with that logic?  When she had fallen, she laid in the yard, unable to get herself to a phone, for about an hour until her next-door neighbor pulled up in his driveway and saw her.  He had called the ambulance and then my dad, and my parents had come to be with her while she was in the hospital.

When I'd called the next week to check on her, she told me that she had a walking cast on her leg and that she would appreciate some help with a couple of things so she hoped we could come to visit her soon.  Of course, I arranged to get there as soon as I could, worrying that things must really be dire if this independent woman needed help taking care of herself.  When my husband, my daughters, and I got there, though, we found out what she actually wanted help with, and it wasn't technically self-care: she wanted assistance with pulling her refrigerator out from the wall in her kitchen so she could do her scheduled quarterly cleaning behind it and with cleaning up debris that had fallen into her yard.  Other than that, she had it covered, she told us, and so we did those chores and then decided to head to the Safari Park the next day.  (Side note: Grandmom had told us to put any limbs, sticks, or leaves from her yard on the curb across the street from her house instead of in her trash can, but I had dumped a bucket of semi-wet leaves in there anyway, thinking it didn't really matter.  As we walked out to the car to leave for the park the following morning, she cooly lifted the lid of her garbage can and peered inside, and then she said, "Somebody put debris in here!"  I had to admit that I had done it, and she said, "Well, next time remember to put all of that stuff on the curb where it's supposed to go; that's what I do!"  Ouch!)

We had a lot of fun on our return trip to the park, but not nearly as much as we'd had the first time when we had gone as a big group.  I have treasured those salad tongs since that day, though, remembering fondly both of our trips there with Grandmom and remembering how she so generously spent her vacation money to buy them for us.

Several years after our second trip to the park, Grandmom had a stroke, and her physical and mental decline began.  Many, many times when we visited her after she was in the nursing home, we talked about how much fun we'd had at the Safari Park; in fact, when her condition had progressed to the point where she couldn't carry on a conversation, we often described things from the day when all 11 of us went in great detail, in an effort to help her to remember that wonderful day and to help her to focus on a much happier time.  

On the night before Grandmom died, as my mom was sitting with her holding her hand, my sister Jennifer called Mom's cell phone and asked Mom to hold the phone up to Grandmom's ear.  Although Grandmom had been unresponsive for several hours before, as Jennifer again tried to use her words to paint a picture for Grandmom of that great visit, Grandmom smiled and her breathing pattern became more relaxed, and I have no doubt that that happy memory was one of the last things on her mind as she transitioned out of this life.

"Not too many people can say they've been kissed by a bison!" Grandmom said. 

Not Knowing - Grandmom's Story, Part 5

Continued from Grandmom's Story, Part 4

Mourning the loss of my grandmother in between the time that she died and the time of her funeral brought with it many emotions; even in the midst of the series of aftershocks that my family felt as a result of the compounded, extended grief after first my dad's death and then his mother's, I found it hard to believe that she was really gone.  She had been slipping away - and it could even be argued that she had already slipped away in essentially all forms except for the physical - for several years, and we knew her time was near, but not coming together as a family to grieve during those few weeks made it difficult for me to accept.  

I knew that I wanted to be prepared to say something about her life to those who would gather to honor her memory; I spent many nights sitting up, intending to write down what I wanted to say but not being able to, either because the words just wouldn't come or because the tears that flowed kept me from being able to see clearly enough to record my thoughts on paper.  I re-read some of the many letters that Grandmom had written to me over the years, and I looked at lots and lots of photos of her from during her life, many of which had also been taken with my dad by her side.  I created a slideshow of many of the pictures and selected background music to go along with it.  None of it helped me to process things or to come up with what I felt were the right words to say as a tribute, though; I ended up leaving to make the trip to the town where my grandmother had lived for 5 decades and some change - and where my dad had grown up - without a firm idea of the words that I wanted to say during the memorial service.

My husband, my daughters, and I met my mom, my sister Nancy, and her husband David at the hotel where we were staying for the weekend; many of the members of my dad's side of our extended family were staying at that same hotel, and, after not having seen the majority of them since I was a teenager, it was a little surreal to keep running into them a little at a time in different settings, in the hotel elevator, the lobby, the parking lot, and the Waffle House next door to the hotel.  I had to tell myself countless times to hold it together, because, as each layer of the family reunited, the subject of my dad's very unexpected illness and death was naturally piggybacked onto that of my grandmother's passing, a recurrent one-two punch that I didn't think I had near the stamina to withstand.  

I didn't sleep much the night before the funeral; I felt unsettled and almost inconsolable.  I texted back and forth with my sister Jennifer who had not been able to make the trip from California that weekend, and together we came up with a message that I planned to communicate at the service the next day.

It's difficult to organize a funeral from out of town, especially in a town with limited resources and where one has limited connections - and especially in a state of compounded grief.  Not knowing what the best thing to do would be, we planned to have the service at the funeral home and then, at the invitation of the members of my grandmother's church, to have fellowship and food afterwards at the church.  Based on a decision my parents had made before my dad had gotten sick, my grandmother's body had been cremated, and my mom had the task of transporting her remains to the funeral home, allowing my grandmother an opportunity to go home in yet another sense.

                       Click to view the slideshow from my grandmother's funeral

When we arrived at the funeral home, we took a few minutes to set up the video projector and my computer so that the slideshow of photos of Grandmom could be shown on the wall of the chapel before the service, and then we met briefly with the funeral director, at which point it came to light that a burial service was not planned as part of the arrangements for that day.  When that realization hit me, I felt the floor drop out from underneath me; it seemed so utterly disrespectful and as if Grandmom's death - and her life - were being disregarded.  I hadn't known that a ceremony for the burial hadn't been planned, and I felt strongly that as a family we needed to lay her to rest, essentially to take the opportunity to do the last thing that we would ever be able to do for her - and maybe for my dad as well.  In the midst of the back-and-forth banter about if and how the arrangements could be changed, my brother-in-law David saw the look on my face and took the funeral director aside.  I'm not sure what he said to the guy, but a few minutes later David came back over and said, "After the memorial service, immediate family can meet the funeral director at the gravesite for the burial of the ashes; is that ok?"  I felt hot tears of gratitude and grief spring to my eyes, and a minute later we were called to come into the chapel for the service to begin.  

The music was playing and the photos of Grandmom were being projected as planned; again things seemed surreal, and I felt as if I were floating to my seat on the front pew.  My father's brothers were in the aisle behind us; his sister had not been able to attend from out-of-state due to her own poor health.  As the music ended, the minister from my grandmother's church stepped up to the microphone and began the service; my grandmother and this woman had not known each other, but the minister knew of my grandmother and certainly of the decades of service that she had given to the church.  She gave an eloquent sermon, a fitting tribute to a woman who had so loved her church and her community and the people of both.  After she had finished, she invited me to come up and speak on behalf of the family.  I pulled out my scribbled notes, and here is what I said:

I know that my grandmother truly appreciated the love of all of you and that she would want to thank everyone who helped her during her life, just as she helped so many of us with her smile, her openness, and her perspective.  So thank you to everyone who visited her and kept her company over the years and to those who ran errands for her once her vision began to fail, especially those who drove her to her doctor's appointments and to Fairfax Methodist Church, which she loved so much.  She would also definitely want to thank my mom and my dad, who did such an amazing job caring for her, particularly over the past few years.  When my dad was sick, he worried so much about his mother.  My mom promised him that she would be there for Grandmom, just as she and Dad had always been, and she was.  When Grandmom passed, Mom was with her, holding her hand, and, for that and for everything else, Mom, Grandmom would want to thank you, and I do too.  

I finished up by thanking people for coming to honor my grandmother's life, although the exact words that I said to convey that part of the message probably got lost somewhere in the midst of my tears, which had started as soon as I said, "When my dad was sick, ..."   I am not a crier.  I felt somehow that my uncontrollable tear-shedding was something of which Dad and Grandmom would not approve - and possibly even something they wouldn't understand; I could almost hear them telling me from behind the scenes to get it together, but I just couldn't do it.  I looked over at my family and at my dad's brothers as I walked back toward my seat on the pew, and I saw that they were all crying too.  The sadness was palpable in the air; after the family members had walked from the chapel into the lobby, we could still hear one man in particular sobbing.  We later found out that it was one of Grandmom's long-time neighbors; while I felt great sorrow at the man's apparent grief, it was a touching reminder of my grandmother's impact and that she had touched so many people, many of whom we didn't even know.  

After the service, family members congregated in the foyer and thanked people for coming as they filed out in the parking lot.  In a quiet moment, I told my dad's cousins Carl and his sister about the dream I had had about their grandfather; the three of us agreed that we were comforted by the thought that our loved ones who had gone on ahead were together now.

After that, we drove to the cemetery and parked near the place where my grandfather had been buried many years before.  The funeral home director and his assistant met us there with a flowers from the service and a shovel; we stood quietly with the sun beaming down on us as we watched the burial of Grandmom's ashes.  It was a simple ceremony, but yet it felt tender and unabridged. 

I will never forget the meal afterwards at the church where my grandmother had been a member for over 50 years, where she had volunteered as the church librarian, and where a couple of years ago the church library was dedicated to her.  The food, which had been prepared by church members, many of whom had been friends of Grandmom’s for decades and some of whom had known Dad since he was young, nourished more than just our bodies.  We didn’t  know most of them, and most of them didn’t know us; but we knew each other’s hearts because we all knew Grandmom, and she was nothing if not heart and spirit. 

Before we said our goodbyes and left the church, we went upstairs to the library that bore my grandmother's name.  We admired the plaque with the engraved dedication to her for her years of service to the church, and we thumbed through some of the neatly organized books on the shelves in the room.  My sister and I came across several sticky-notes tucked inside books; on the notes were two things that made us smile: the name of Dad's business, letting us know that he had donated some office supplies to the library, and a sampling of Grandmom's unique style of penmanship; she had written notes about each book, possibly to herself or maybe to future readers.  

After we'd gotten back to the hotel, some of our group decided to go antiquing in a few nearby stores; my sister Nancy and I walked to a convenience store and bought some beer, and then we sat in the sun and drank it, still wearing our funeral dresses, on the tailgate of my husband's truck in the parking lot in back of the hotel.  Whether it was the sun or the beer or the company - or a combination of all three, sitting out there felt somewhat curative; we knew it was exactly what Dad would have done had he been there, and somehow knowing that helped a little bit, too.

My grandparents' house, where my dad grew up

The next day, we packed up the car and drove around the little town one last time.  We ended our tour by driving past the old textile mill where both of my grandparents had worked for almost all of their adult lives.  The building was in the midst of being torn down, overseas outsourcing having taken the work that had provided a living for many of the townspeople for so many years.  I watched in the side mirror as the mill got smaller and smaller as we drove away, and I felt unexpectedly sad to know that this would probably be the last time I would ever come to this place, a town that held so much of my grandmother and my dad - and even a little bit of me. 

"The Mill"

Knock, Knock!

On the next to the last day that my dad was on this Earth, I promised him that I would take care of my mom and my grandmother and my siblings, and I told him that we were so thankful to have had him to pull all of us together as a family.  And then, as I knew I needed to say for him, after all he had done for me all of my life, I said to him, "You can go. But you have to come back to me!" Dad, who had lain still for more than a day except for the slow rise and fall of his chest from rhythmic breathing, started stirring in the bed, moving around and kicking the covers in an agitated fashion.  Instantly I realized that he had heard me, and I was ashamed of the selfishness behind what I knew he thought I was asking him to do.  "Oh, Dad," I cried. "I know your body can't do it anymore. I know you are doing everything you can to stay here with us, but it's ok if you can't. You've finished the race: you've done everything you needed to do, and we will be ok."  He immediately settled down again, and I just sat there beside him, quietly crying, biting my lip to keep from wailing because I knew if I did that he would hear and be upset by that too.  I wanted to tell him that what I'd meant was that I hoped he could try to send me a sign, after he'd gone on ahead, and that he could come and be with me and the rest of the family later, in spirit.  I didn't tell him that, though, because I didn't want to risk causing him any more distress, and so I told myself that he would do it anyway, without having been asked, if he could find a way.

There are so many times these days that I feel him right here with me, and my sisters and my mom feel the same thing at times, too.  Sometimes I feel his spirit when I look up into the sky and see big white clouds contrasted against a blue sky - or when I see a beautiful sunset or sunrise.  Sometimes it's when I see or hear or even smell something that reminds me of him in such a strong way that it's impossible to ignore or overlook.  And sometimes the thing that makes me feel a connection with my dad is seeing a redbird, something that often happens at times when I need comfort or encouragement or when I just need something to make me smile and think more positively.  

My sister Nancy was the one who first commented that she had been noticing a redbird around her house and in other locations on a frequent basis.  After she said that, I started thinking about it and realized that I'd seen one around more often that I usually did, too. Other people in the family began to comment that they had seen redbirds in certain locations at different times, and over time it has evolved as a symbol of comfort and positivity whenever any of us sees a redbird.  

I sometimes think that Dad's spirit takes turns spending time now with each person he loved and watched over while he was here in this world.  If one or more of us are on the road, I think he's probably traveling along with us; if one of us is having a particularly difficult day, he's likely there to comfort us, often in redbird form.  

Yesterday morning, not long after I'd gotten to work, I checked my email and saw one in my Inbox from my sister Nancy's friend Suzanne, who, along with her family, has been having to make some very difficult decisions and plans as her dad enters into hospice care.  In the email, which Suzanne had sent to me and both of my sisters, she told us about something that had happened that morning as she was getting ready for the day.  Suzanne knew my dad and has heard us talk about the significance that redbirds have to us, and she has given me permission to share her words and a that photo she took:

I was getting ready in my dad's bathroom for a meeting at the hospice home. I was thinking about you girls and what you went through and how tough this all is. When I hear one knock at the window.  I think it's something to do with the storm. 

Knock again.  So I look, and this determined cardinal is there.  Going back and forth on the window.  Making sure I see him.  He only delivers one knock at a time .... but they are forceful.

Notice me!  I run to get my iPad to get the photo and capture the moment.  He knocks while I run away.  I take the photo and return to getting ready.  KNOCK.  

I turn around and say out loud, "Yes, I see you. And I know everything will be ok."

He knocks one last time and then is gone.  

And I have chills and an unbelievable sense of peace at the road we are about to travel.//

~Suzanne

Here is the photo she took - the redbird is in the bottom right corner of the window, looking in at her.

Memories on April Fool's Day

Twenty years ago today, my then-fiance and I went to the County Courthouse during our lunch break and got our marriage license.  We had intentionally planned to get our license that day: I've always loved April Fool's Day - even if I don't have a good idea or an opportunity to pull a prank on someone, I love the idea that I COULD - and also it was the only day that we could coordinate our schedules to make it downtown during business hours before our wedding date less than three weeks later.  

It's a good thing we did it that day, because, as it turned out, on April 2, the next day, my grandmother died.  

My maternal grandmother was the grandparent to whom I was the closest at the time; I saw or tried to see some of myself in her - or I guess I should say I tried to see some of her in me.  Anyway, even though she had been sick for awhile as she struggled through a relapse of breast cancer, I was shocked by the news.  I was grateful that my grandmother had hung on long enough to meet my husband-to-be and to hear about my wedding plans - and most importantly to meet her youngest grandchild, whom she held in her arms not long before she went on ahead, but I was so saddened by the loss that I could hardly put one foot in front of the other.  It was the first death that I had experienced of someone to whom I was close, and I was at a loss of how to even try to cope.  

Needless to say, the next few days were a blur as we made our way to the city where she lived and gathered together as an extended family to pay our respects.  I remember that I didn't think I would be able to sit through the service in the church without bolting for the door because I was afraid my cries would be too loud.  I remember hardly being able to bear the pain of looking at my mom, at my two aunts - one of whom had a two year-old and a two-week-old baby - and most especially at my grandfather, whose sky-blue eyes held such endless sadness that there seemed to be no possibility of ever being able to comfort him.  I remember that I stood with one of my cousins and my fiance long after the rest of the people had gone back to their cars at the cemetery; the funeral director had dismissed us after they'd lowered the casket into the ground, but I just couldn't bring myself to walk away before I'd seen her body buried, one final thing I felt I could do, if not for her than in her honor.  We stood there by the headstones of the other graves around her plot, and I looked for four-leaf clovers while the dirt was placed over her beautiful silver casket, adorned with beautiful tiny daisies.  I remember that I was a little bit comforted by wearing one of my grandmother's sweaters to the funeral; it was the only thing I had of hers besides the opal ring she had given me - "October birthday girl to October birthday girl,"she'd said - when I celebrated my sixteenth birthday.  Years later, I pulled that sweater from the back of my closet and wore it to the funeral of a friend, and in the pocket I found the handkerchief that my dad had given to me at my grandmother's funeral, a reminder of both the tears I had shed and of the love my family shared as we tried to support each other through those rough days.  

I knew my grandmother well enough to know that she would absolutely have wanted "the show to go on," and so, just a couple of weeks after we laid her to rest, my dad walked me down the aisle and I said "I do" to my new husband in front of many of our family and friends, at sunset on the banks of the Mississippi River.  I wore the gerber daisy wrist corsage that was intended for my grandmother during the ceremony; I felt my her absence profoundly that day as I have many days since. 

Wearing the corsage meant for my grandmother

Today, when I think back on that April Fool's Day at the Courthouse, to the days afterwards leading up to the wedding, and to the wedding itself, so many emotions run through me.  I feel lucky, I feel loved, I feel happy for what I have learned and shared and survived.  Twenty years, wow.  Pretty incredible.

My grandfather, at my wedding, just two weeks after he'd lost his wife.
"I'm here for two," he said, and I knew just what he meant.

The Church Pew

I'm taking an online grief class, and part of the focus of the class is to put together a collection of memories and pieces of information about the loved one who went on ahead.  We have been given a list of fill-in-the-blank style questions to help in the information gathering process; the list includes things like favorite color, favorite subject in school, first job, hobbies, and words of wisdom.  Some of it is easy for me to complete, some of it is hard to remember or to narrow down, and some of it I don't know.  

It's the latter that really upsets me; it makes me think about just how sad it is that many of my dad's stories died along with him.  Luckily, my mom and my siblings can fill in some of the information that I don't know, but, when they have exhausted their repertoire, that's all there is.  And that hurts in a way that I didn't know existed before.

When my dad was in the hospital waiting for the surgery that resulted in his being officially diagnosed with cancer, he was very talkative, around the clock.  Some of what he spoke about were things he was worried about, mainly my mom and his mom.  He chatted about what he hoped to be able to do when he got out of the hospital.  He asked about each of his grandchildren and said he could hardly wait to see them again.  In between these conversations, though, he said a few things that were out of the blue and some that were out of context and maybe even out of the realm of what we could understand.  One of those things he said was that he could see his dad, who had passed away years before, and a man whom he said was his "first preacher" from when he was a little boy and whom he said had a last name of Whitehead.  According to my dad, he could see both of these men sitting at the end of a church pew.  He didn't seem to know what they were doing or what else was going on in that scene, but it did seem to leave him a little unsettled.

Fast forward about 7 months later, after my dad and then his mom (my grandmother) both had gone on ahead, and my extended family on my dad's side had gathered for a memorial service for my grandmother in her hometown in Alabama, which is where my dad grew up.  I asked several of the people who had known my dad as a child, including his brother, if they remembered a preacher by the name of Whitehead, and they all said they did not recognize the name.  The story remains a mystery, and the fact that it probably always will bothers me, a lot.  I wish I could hold onto every bit of my dad that ever was, every memory and every fact, even those that I didn't know yet.  I guess there is a kind of grief for the loss of those things that comes along with the grief of the loss of a loved one, too, yet another thing that I wish I didn't have to know.

Not Knowing, Part 1

One of the things that my dad worried about the most when he was sick and even before then was his mom, who had been living alone in a small town in southern Alabama until the age of 87, when she suffered a stroke.

Kind of like my dad, she lost her independence in the blink of an eye, never to regain it, even though we had hopes that she would, at least to some extent.  Kind of like my dad, she was in very good shape physically and mentally, until her illness struck.  But unlike my dad, in addition to her physical skills, her cognitive abilities also were severely affected as a result of the stroke, and she did not have anyone in her area to take the kind of care of her that was required after that or the resources to have it provided in her home.  And so, as her hospital stay after the stroke was coming to an end, a skilled nursing facility was strongly recommended by the medical staff, and my parents decided to move her to one that was close to their house, one state over from hers.  

The downside was that the move disoriented her more and that, since it wasn't feasible for her friends from her hometown to visit her several hours from her hometown, she ended up being pretty isolated there, at least from people who had been involved in her life as it was before she got sick.  The upside was that my parents were able to check in on her several times a week and to make sure she was getting good care, and the rest of us were able to see her too whenever we were in town.  After the initial landslide loss of function, her memory and her physical status continued to deteriorate, a little at a time.  Eventually she was diagnosed with Alzheimer's Disease and she wasn't even consistent in recognizing those of us she had known for all of our lives, but she always recognized her son, my dad.  

Grandmom's first Christmas in the nursing home

Dad and I discussed many times over the years how tough it was to see Grandmom be so changed, so dependent.  She had always been a bold woman who strived to do things for herself and to do her part in making the world a better place.  All her life, she had lived on a fixed income; she did not have fancy things or take fancy trips, but she was grateful and generous and happy all the same.  Before she got sick, at the beginning of every year, she wrote out a detailed budget for herself for the upcoming year and mailed it to my dad.  The few times I happened to see what she'd written, I was flabbergasted at how specific it was and at my grandmother's frugality, and I was amazed that despite the limits of her finances she still committed to tithing to her church year after year.  She was not what one would call a Southern belle; rather, she was much more of an activist and a liberal-thinker for her time who valued individual rights and freedom for all.  

QUITE THE DAREDEVIL IN YEARS PAST:  With her younger brother Freddie, in Daytona Beach, FL ...

... and riding the bull at Gilley's

When Grandmom first got to the nursing home, she needed supervision around the clock and help with some things, but there were some things about her personality that were still the same.  She had always been a competitive person, and we saw shades of that come out in things she did there too; once when we visited her she told us she was the fastest person on a walker in the whole place.  Another time she proudly informed us that she had won the Bingo game there the day before, and she showed us a ladybug broach that she'd won for proof.  She was always so grateful for visitors, even as she became unclear on exactly who we all were, and she especially lit up whenever she saw my dad.

About a month before Dad was diagnosed with cancer, he and my mom sat down with Grandmom's doctor to discuss her steadily declining condition.  She had become completely dependent on others for everything, including feeding herself, and had been having some trouble with swallowing that seemed to indicate that she had had one or more mini-strokes that were hastening her decline.  Because of the swallowing difficulties, she was at risk for pneumonia and she was also having bouts of depression and anxiety, even though she did not seem to be aware of where she was or what was going on around her most of the time.  The physician recommended that my dad, who held Grandmom's medical power of attorney, enroll his mother in hospice care, which meant that she would continue to be cared for in the nursing home but that she would also be monitored by medical staff from a hospice agency who were specifically trained in end-of-life comfort care.  Wanting the best possible care for his mom, Dad signed the papers with a heavy heart; he'd committed to providing for and to looking after his mom years ago and felt in his heart that this was the best choice for her, as did we.

Worrying about her, her prognosis, and her comfort continued to weigh heavily on my dad in the days ahead; in fact, the last text message I ever got from him, which was just before he was diagnosed, was about his concerns for her.  He said he felt that she was declining so quickly that he didn't think she would survive even one month longer.  He said that he was worried about how "the girls" (meaning my children and my nieces, all of whom had visited Grandmom in the nursing home recently but had not seen her in her present condition) were taking the news of her decline; the whole situation was both difficult and sad for everyone involved.  Dad continued to visit his mom whenever he could, as did my mom; thinking about her was a part of their normal routine. 

Dad last visited him mom in the nursing home the day before he was rushed to the hospital and the mass in his head was discovered.  Suddenly, his own health was unstable and his life was at risk, weirdly and shockingly in some ways even more so than his 90 year-old mother.

In his typical way, though, he continued to worry about his responsibilities (his mom being one of the things topping his list) throughout the course of his illness, despite the fact that he was very sick himself.  During his first hospitalization and his stay at the rehab hospital, my sisters and I stood in for Dad, with at least one of us checking in on Grandmom every few days.  It was something we were glad to do; it felt like helping to take care of her was also helping to take care of him.

The first time we went to see her was the day after Dad's surgery.  My sister Jennifer and I went, while Mom and Nancy stayed at the hospital with Dad.  We were still reeling from having just been given the devastating diagnosis less than 24 hours before, and walking into Grandmom's room in the nursing home with a smile on our faces as if nothing was wrong was tough, to say the least. I couldn't shake the anguish that came from thinking about how much had changed in the six days it had been since Dad had last been there to visit his mom, but I felt in my heart that the news that Dad was so sick that he was unable to visit her would be more than Grandmom could (or should have to) handle at that point.  Neither of us is much of an actress, but, for Grandmom's sake and for Dad's, thankfully Jennifer and I pulled it off, and I was glad we were able to spare her the pain and fear that had taken root in the hearts of the rest of us who did know the truth.

After we told Grandmom goodbye in her room, we went to the nursing station down the hall to talk to the nurse who was taking care of her that day.  My mom had been doing Grandmom's laundry, collecting her dirty clothes weekly and then washing them and returning the clothes to her; however, given what we were faced with dealing with at that point, we decided to tell the staff that we wanted to have the laundry done at the facility until further notice.  "I'm Nellie's granddaughter," I said, "and I need to let you know that my dad is very sick and so neither he nor my mom will be able to visit her for awhile.  In fact, I need to give you my contact information and ask that you call me in case of emergency or if Grandmom needs anything."

Behind the desk, the nurse and several nursing assistants all stopped what they were doing and looked at me like I was speaking in tongues.  One of the CNA's leaned in and said, "Are you talking about that really nice bald-headed man that visits Miss Nellie all the time?"

"Yes, that's my dad," I told her.

"He's not sick," she asserted. "He was just up here to see her a few days ago, and he was smiling and joking around like he always does. He's the picture of good health!"

I could tell by the looks on the faces of everyone who was listening that they thought I was mistaken.  I understood their thought process; it was the same one that was going through my head repeatedly, fueling my shock and disbelief as well.  I gave them a brief run-down on what had happened: "He got sick while he was out running last Saturday and was taken to the hospital, where they found out he had a mass in his head.  Yesterday, he had surgery, and we found out that he has brain cancer."  There.  I said it, out loud, for the first time.  I felt sick to my stomach, until the voice in my head told me that it wasn't true, it couldn't be true.  

But it was.  In what would become a pattern from that moment forward, as soon as I delivered the awful news about my dad, I was put into a position of having to try to comfort the recipients of the news.  The second after the words left my mouth, I felt guilty about having had to deliver such a blow.  I've since learned that there is a term for something like this called  'vicarious traumatization,' which happens when a trauma specialist spends day after day being exposed to another's trauma.  But it was necessary that they knew, and the news was out.  "We do not want my grandmother to be told about my dad; please make a note in the chart and be sure everyone knows."  I stood there watching them try to keep their composure, until the nurse whom I had originally addressed stepped from around the desk and hugged me.  When she backed up, she had tears in her eyes, and she said, "I'm so sorry.  Please tell him and your mom that we will take extra good care of Miss Nellie."  I swallowed my own tears, thanked her, handed her a piece of paper with my contact information and instructions about having the laundry done for Grandmom on it, and backed away, before I lost it.  

Thinking back, I wonder if what I thought was true actually was:  did I insist that Grandmom not be told because it was better for her, or for us?  Was it too much for her to handle having to hear the news, or for me to have to tell her?  Was it taking the easy way out in avoiding having to deal with her emotions?  Was it protecting her or us?  I think it was for her sake, and for Dad's, but like a lot of things that went on during that time, I can't be sure.  Whether or not it was right to decide not to tell her that day and in the weeks that followed is something that I have questioned many times since then.  Regardless, though, with Grandmom's care squared away, Jennifer and I left the nursing home and headed back to the hospital.

In a life-is-weirder-than-fiction moment, later that day we discovered that Robbie, one of the nurses that was on Grandmom's hospice service, also worked at the hospital where Dad was.  She heard about Dad from the nurses at the nursing home and came to see Dad in the ICU.  (Maybe she was verifying the accuracy of what I'd said for the rest of the staff at Grandmom's facility.)  It seemed to confuse Dad at first when he saw her there, which I actually thought was a good sign, because it was kind of puzzling to have someone involved in Grandmom's care show up on the scene at the hospital where Dad was.  Robbie asked some questions about what had happened and about what was going on with Dad, and then she told us that she would check in on Grandmom more often than usual and would report back to my parents.  We were grateful to have the help; it eased our minds, especially Dad's, to know that Grandmom would be getting some extra attention and interaction.  

It's funny how what seems tragic can change in a single moment.  As things were, after the news of hospice care having become necessary for Grandmom, my family was grieving.  It seemed terrible to have had to watch her decline as she became more physically challenged and more disoriented.  And now, in the blink of an eye, the tragedy had changed, or maybe it had just widened; our perspective and possibly even our forbearance had been altered by Dad's sudden illness.  I think we just thought that was the one-two punch that we just had to get through, that if we could rally and shore up, things would get better.  We had to think that way; it was the only thing keeping us from falling apart.

To Be Continued ... Not Knowing, Part 2

The Lives They Loved

Recently, The New York Times invited readers to send in a photo that illustrates a story of someone close to them who died this year.  Here's the story that resulted:

THE LIVES THEY LOVED - New York Times

What a cool feature.  It’s so hard to choose just one photo and just one story though, but here’s one that I’d like to add to the list:

This is a photo of my dad, William Lee Bullard, and my grandmother, Nellie Hine Bullard, both of whom died in 2011.  In the photo, they are standing in the library of the church that my grandmother attended for over 50 years.

My grandmother was a voracious reader.  She lived most of her life in a small town in Alabama, and I remember as a child hearing her say that, although she might not ever have to means or the opportunity to do much traveling, she planned to expand her horizons through reading.  To honor her work as a volunteer as the church librarian for decades, the library was dedicated to her and named after her a few years ago.

After her funeral, my family and I went back to her church where church members had prepared a fantastic meal for us.  I didn’t know most of the people in the dining hall that day, but I felt a connection to them based on the mutual love and respect they all had for my grandmother and many for my dad as well.  After the meal, we went upstairs to the library, and I opened several of the books on the shelves.  Behind each of the front covers was a pocket holding a library card on which Grandmom had written her name on the first line as she checked each one out to read over time.   Sticking out of the top of some of the books was a small piece of paper, and when I opened the books to investigate I saw that the papers were sticky notes from my dad’s office that he had given to Grandmom as part of her librarian supplies.  She’d used the sticky notes as bookmarks and had noted the date on each.  I love this picture because it makes me think about how supportive my dad was of the interests of his mother and of everyone else he knew and about her passion for service and for education, things that were both so exemplary of the people that they were.

The Fight Against Cancer

When I was in college, my grandmother (my mother’s mother) was diagnosed with breast cancer.  She had surgery, went through chemo, and made it into remission for awhile.

After I graduated from college, I lived with her and my grandfather for a few months while I did one of my internships at a hospital near their house.  At the time, my grandmother, then out of remission, was struggling through her second course of chemo, which did not do its job that time around.  She held on long enough to give her input during the planning of my wedding and to hold her youngest grandchild in her arms for the first time, and then she went on ahead, two weeks before I got married.  And thus begun my membership in the I Hate Cancer Club!

Spurred on by this over the years, I’ve participated in at least 25 runs benefiting organizations involved in the fight against cancer, including the Race for the Cure, the St. Jude Marathon and Half-Marathon, and various other races.  Each time, I was proud and humbled to be part of the effort and excited to be part of the extended cheering squad for those involved in this war.

Last August, I participated in the Avenue of Hope 5K benefiting the American Cancer Society in honor of Cindy, a friend of mine battling cancer.  It was a small, local charity race, my favorite kind, full of meaning and spirit and camaraderie.  A group of my friends also completed the race in honor of Cindy as well as many other loved ones who are fighting or have fought this terrible disease.

Cindy with her "team" at the ACS race, August 2010

 Only eleven weeks later, taking part in the fight against cancer took on a whole new meaning for me and the rest of my family. 

Last weekend, I ran the Avenue of Hope 5K again, this time with my younger daughter Molly, who proudly wore her grandfather’s racing shirt in his memory and who won her age division.

While my dad was sick, one thing that irritated him was, as he termed it, “too much talking.”  I could never figure out if it was because of the fatigue from which he suffered because of the incessant insomnia caused by the medications he was taking, because of the tumor in his brain, because of the emotional stress he was under, or because of something else that he couldn’t tolerate chaos or noise during that time.  Many times he asked us to be quiet, even though oftentimes he himself would later break into the silence by asking a question or making a comment.  Most of the time, he just couldn’t tolerate someone talking about the same thing for too long or asking him too many questions, and he particularly disliked it when several people around him were having a conversation and when other people were taking what he considered to be too long to figure something out.  He just didn’t see the need for inefficiency, something to which I can certainly relate.  As we talked about schedules and plans and details that we felt needed to be ironed out, Dad often chimed in by saying, “Don’t worry – just hurry!” meaning he thought there should be less discussion and more action.  One of my nieces even paraphrased Dad at one point when we were talking about something we were going to do later in the day and said, “Let’s quit talking about it and just do this thing!”

As much as I am honored and motivated to continue to participate in events to raise money and to promote awareness for this worthy cause, though, and as much as I take notice of the bumper stickers and related paraphernalia for awareness of different types of cancers, I’m pretty sure everyone is aware of cancer and the devastation it leaves in its wake at this point.  What I want - what we really need in this fight - are prevention and a cure.  Now let’s quit talking about it and just do this thing!