Well Worth the Effort

Many mornings when I get up before the sun rises to see my daughter off to high school it reminds me of how I used to drag myself out of bed in the early morning on school days when I was her age.  I got up then, though, not because my school started really early like hers does, but because I had to get in a run before school when I was in the midst of a training season for track or cross-country. 

Early morning running with my dad

I’ve never been a morning person.  On most days, I get up because I have to, not because I want to at that particular time, and, truth be told, I hated getting up for those early morning runs.  It was always dark, and the temperature always seemed to be cooler than I preferred, even in the late spring or early fall months.  I was always a little stiff and often so tired at that time of day that I could hardly keep my eyes open as I ran down the street, guided by the streetlights, counting freshly thrown rolled-up newspapers in the driveways to pass the time as I went along.  Many afternoons or evenings when I ran, often for the second time in the same day, I did it because I loved it, but, on those mornings, I did it because my dad expected me to put in the extra effort.  It was part of the plan he had written out for me each week, the training program that he said would pay off at the next race, which, for me, was always just around the corner.  I loved the racing part, too, but not those morning runs – those I just struggled through.

I remember on so many occasions looking up as I crossed the finish line at the end of a race so that I could see the look on my dad’s face.  I judged my performance in each event by the look I saw in my dad’s eyes at the end of the race; in an instant, I could tell what he was thinking – and many times it was this: it was well worth the effort. 

I knew it then, and I know it even more now: there is such privilege that comes with knowing someone well enough to know what he or she is thinking, a secret code of which it is an honor to have an understanding.  I often think back to the few episodes of perhaps oddly placed confidence that I had when I was helping my dad during the weeks of his illness. One instance in particular occurred on the day my dad went from the hospital to a rehab facility across town. The hospital staff wanted to have him transported by ambulance, but I felt it was essential to his mental state not to have to ride in another ambulance at that juncture in his recovery. Somehow, from out of necessity I guess, I found the confidence to tell the nurses that I was certain I could safely help him get from a wheelchair to the car at the hospital and then from the car to the wheelchair and inside the rehab facility.  "I have no doubt I can keep him safe," I remember saying to a couple of nurses in the hallway outside his hospital room.  I felt like they were looking at me doubtfully, but they said ok and that was that.  I am trained in assisting with patient transfers like that, but I work with children, not adults.  I felt sure though; I knew I would do anything to help my dad, and I was confident that together our effort would pay off.

Doing whatever it takes, with both of us wearing the same expression of determination

There were a few more things that happened like that while he was sick, with my certainty coming from almost out of the blue, each time tied to the fact that I was completely determined to do whatever it took to help take care of my dad.  The most striking bout of unexplainable conviction that I experienced during his illness, though, was when he asked me how we would know what he wanted if he lost the ability to talk.

“I’ll just know,” I told him, somehow without missing a beat after he threw that question out into the room.  I cannot explain the sense of sureness I felt in the moment; looking back, I realize that it would have been much more reasonable for me to feel a sense of terror and uncertainty in the moment.  We were in the den of my parents’ house, the day after we’d brought him home from the hospital for the last time.  It was New Year’s Day, and my dad had not rebounded the way I’d thought he would once he was on his home turf.  He was still trying to eat to get his strength back, and he had been asking for small servings of food since he’d woken up that morning: “maybe a piece of bacon,” “some fruity dessert,” (which is what he called the cut-up pieces of fruit in a plastic bowl purchased from the produce section at the grocery store), and, the request always accompanied by a gesture of the quiet snapping of his fingers, “just a little piece of chocolate.” He’d asked for and had eaten a little of each, along with a sip of his favorite beer, Foster’s, which he drank through a straw while he sat up against the cranked-up mattress of the hospital bed in the middle of the den.  His voice was hoarse and breathy, and it seemed to be getting weaker as time went on despite the efforts of my dad to eat and take medicine that was supposed to make him feel better.

His concern about losing his ability to talk was legitimate, and I honestly don’t know the source of the confidence I heard in my own voice when I answered his question that day in the second-to-last verbal exchange I ever had with him.  I guess I would have to say it was an accolade of sorts for the extra time the rest of my family and I had been lucky enough to have with him over the weeks of his illness as we battled along with him.  I knew that if necessary, I would look at my dad and just know what he was thinking, just like those times many years ago when I crossed the finish line of a race. And again, it was well worth the effort.

What I've Learned About Mothering

Sometimes people say that what doesn't kill you makes you stronger; I have to say, though, that that's a sentiment with which I cannot agree.

I don't feel stronger as a result of the challenges I have encountered, but I do feel changed - and I recognize that I have learned some things from those experiences.  Much of what I've assimilated is on the pages of this blog, and I suspect there is even more to come, from grief and perspective and just life in general.  Many of those things, I am realizing, can be valuable, useful lessons, serving to make me more solicitous, more introspective, and more appreciative of what I have - all of which are easily applied to perhaps the most challenging thing in my life: mothering.

From the road I've traveled, I've learned that the life I have won't last forever; it will change in many ways, some over time and some quickly, some for the better and some tragically, and that because of that I need to work hard to appreciate and remember each day.  

I've learned that it's easy to take it all for granted - and sometimes to wish it away.  I've learned that at some point there is an end to the sleepless nights, the piles of laundry, the hectic mornings filled with things like looking for a missing shoe and packing lunches and kisses goodbye, the nerve-wrecking parent-teacher conferences, the disarray of toys and books scattered everywhere, the lazy summer mornings that stretch into afternoons, the shopping for what I hoped was the perfect birthday or Christmas gift - the Tickle Me Elmo or the Jessie Cowgirl doll or the Furby that I stood in long lines to buy, ready to elbow my way to the front of the aisle to get my child what I thought her childhood wouldn't be complete without.

What I have loved most of all was seeing the trust and happiness in my children's faces, hearing their infectious giggles, feeling their hand in mine, and recognizing things in them that they had learned from me.  Little by little, those days of not being able to shower or go into the bathroom by myself have transformed into closed bedroom doors and teenaged eye rolls of embarrassment that only a parent can still interpret as love, and somewhere along the way it hit me that it's impossible to go back and do one single minute over; I can't take back words said in anger or exhaustion, and I can't rewind the time from even one day to allow myself to better remember or to better react.  All I can do is hope that what I've made up on my own and what I've figured out with the help of those who have advised me or in some way mothered me has been right, or at least right enough, and then try to do my best with what comes as time marches forward, as we go through more proofreading, conflicts with friends and teachers and roommates, texting, phone conversations, choices of class schedules and fashion purchases and even more important things, being sure to celebrate the victories - both big and small, and just trying to keep up with everything.

These days I'm amazed when I think about how I used to think that mothering a baby was so easily definable as the hard part; it's really all the hard part, especially, as I now know, letting go as they make their own decisions, watching them stretch their wings, realizing that they are their own people, swiftly moving towards adulthood and independence, despite the feelings of joy and relief I get when they occasionally come to me for help.

When I look at the hundreds of family photos from over the years, I remember and I cherish the special moments captured on film - the birthday parties, the school programs, the first days of school, the Christmases and the Easters.  But the moments that I treasure the most when I think back are those that no one thought to capture on film, the everyday moments, those from days that I think were accurately and brilliantly labeled along the way as perfectly ordinary.

I wouldn't trade them for dollers or barbies either!

Mark of Honor

During the months while my dad was in training for the Ironman triathlon before he was diagnosed with cancer, he mentioned several times that he was thinking about getting a tattoo after he finished the race to celebrate his achievement.  He said that he wanted to get the Ironman logo on his ankle.  Finishing the Ironman was definitely a Bucket List item for him, and we supported his plan to get inked after such an impressive accomplishment.

In the days before and just after the time when he had surgery and when we got the diagnosis, he brought up the subject of the tattoo again, wondering aloud if it would seem like a misrepresentation if he went ahead and got the Ironman symbol on his leg even if he wasn’t able to complete in the event.  I can still recall the feeling of the precariousness of the air in his room in the Neuro-ICU as I think back to the last conversation I had with him about the subject.  “I’d hate to get it done and then have people ask me about it and then I’d have to say I didn’t really do it,” he said to my sister Jennifer and me, certainly picturing himself - as did we and as we surely wanted him to do – years down the road, reminiscing about his battle with brain cancer as a thing in the past.  

“What if we get one too – would that make you want to do it?” Jennifer asked him.  

“What?? Y’all can’t get one!  It’s only for Ironman athletes!!”  he said, incredulous at the apparent ludicrousness of the idea.  We watched him for a minute as he seemed to be working something out in his head and then he said dispiritedly, “I guess I don’t need to get one either.”  The look in his eyes and the emotion in his voice were heartbreaking, and, looking back, such a harbinger of things to come as he was forced to rewrite his Bucket List again and again due to his declining health.

On the Saturday after my dad went on ahead, we held a memorial celebration in his honor.  I don’t recall how the topic of tattoos came up then as I talked to my mom’s cousin and her husband, but I do remember the stunned look on their faces when I told them that my sisters, my mom, and I were discussing getting a memorial tattoo.  They exchanged a look that appeared to me to be one of horror and pity, one that said, “They are in shock but hopefully they won’t do anything CRAZY!”   I didn’t care, though; like everything my family had been through over the eleven weeks preceding that moment in time, we knew that our situation, our experience, and our perspective were unique, something that no one else would ever totally understand or view as we did.  

Last summer, on our first family vacation without Dad, my sister Nancy brought up the idea again, and my oldest daughter started saying that she wanted to be in on the commemorative inking as well.  The problem was that we weren’t sure of the design we wanted to get or where on our bodies we wanted to get it.  We went back and forth with thoughts and ideas; the frontrunner was a picture of a running stickman that would go on the back of each of our left shoulders.  Still, though, there was some uncertainty, or at least some inaction, and the plan remained inert.

Over the course of the last year, in the time span from one family vacation to another, my sisters, my mom, my daughter, and I all agreed that we liked the idea of having the image be consist of a depiction of the way Dad typically signed off when he wrote notes and messages to people, with two lower-case printed b’s followed by two forward slash marks as an accentuation or underscoring of his initials.  We also decided, based on an astute comment made by my youngest sister Nancy’s best friend, that we wanted to have the tattoo in a place on our bodies where we could easily see it, with the idea that that could bring comfort and inspiration to each of us.

And so, last week, on the day we all gathered in California, three of us decided to take the plunge – Nancy, my daughter Maddie, and me.  My mom and my middle sister Jennifer went with us to the tattoo parlor (they are still considering getting ink and plan to use the same design if they decide to go ahead with the idea at some point), and Mom brought along several samples of things that Dad had written to show the tattoo artist, who actually traced Dad’s writing for the pattern she used on all three of us.

Nancy and I opted to get the design done in navy blue, Dad’s favorite color, and Maddie chose black, which I thought was funny because Dad often wore those two colors together when he ran (“Real runners don’t wear matching outfits!” he claimed.).  All three of us decided to get the design placed facing us, on the inside of our left wrist, since Dad was left-handed, and positioned slightly off-center, to symbolize Dad’s uniqueness.  In what I thought was a really cool and kindhearted gesture, the tattoo artist placed the sticky note that’s she’d used to make the template of the design on the table beside us so we could see it as we got it done.  One after the other, we were marked, in honor and in memory of the man who will always be as much a part of us as the ink on our wrists.

When my daughter told one of her friends what we'd done, her friend said,
"Some families plant a tree in someone's memory, but this is way cooler."

It's not an Ironman insignia, but I think this one was well earned and sits as a mark of honor too.

One Year Later

It’s been one year today since my dad went on ahead.  I still can’t fully grasp that he was sick or that he is gone.  I wonder if the other people who were involved a year ago remember things differently from how they play out in my memory.  Maybe my eyes weren’t wide open, likely my memories aren’t all 100%, almost surely my perspective is just my view through a viewfinder.  

But here we are, one year later.  I know that living through this experience has changed each of us individually and changed us as a group.  And while we now bear a sadness that will never completely go away, we carry a strength and certain knowledge that shape our lives and influence everything we do.  

One thing I am sure that everyone connected to my family’s tragedy would agree on is that what happened was shocking and awful.  We are surviving only through the closeness,  connection, learning, insights, love, and support that we have had and continue to have.  And, despite the time that has gone by and perhaps even because of it, I am still deeply engaged in the grief process right now.  Even through the fog of that grief, though, I feel a lot of love and appreciation, both for my dad’s life and all he taught me and for the experience of being with him during my whole life and through his sickness and his death.  What I’m trying to figure out how to do now is to be happy without him physically being present, to think messages to him instead of telling him directly, to see something beautiful like a perfect sunset and not fall apart because he can’t see it, to experience joy in things and to keep my heart from breaking over and over because he can’t be here to celebrate with us, to go to sleep without crying, to remember without falling apart.  

Shakespeare said, “Sorrow ends not when it seemeth done.”  How very true!  The persistence of grief and its changing nature have been very surprising to me.  I’ve heard it said that grief is a measure of one’s love, and from my perspective that appears to be true:  we may shed a tear or feel sad when someone whom we didn’t really know or love dies, but that’s not really grief, at least not the same kind we experience when someone whom we love and who is part of the foundation of the person we are dies.  That kind brings us to our knees, causes a burning pain in our hearts that does not diminish over time, and colors everything we do and think and say.  It sounds like a symphony playing with one instrument that’s really out of tune, and it changes who we are.  

One of my sisters told me that she recently read that coming to terms with a loved one's death is like ramming a log into a door.  Eventually it will get through, but, until then, it's noisy, exhausting, frustrating, and painful at times.  She said that looking at grief in that way gives her hope that one day what we will feel is gratefulness for having had Dad for as many years as we did, happiness when we remember him, and a sense of pride at how we rallied and came together to take care of him when he needed us.  But for now, the grief is still so thick and ever-present, and perspective is something for which we struggle on a daily basis.

Besides missing my dad and feeling the pain of his absence to my very core, something that gets to me now is the pressure to have moved on, to have gotten over it, to have “healed” (a word I hate in this context).   I’m not going to go back to “normal” - I will never be the person I was before my dad got sick.  I can't stand it when someone dies and people keep saying, “Be strong!” or "Hang in there!" to the family.  Really?  Why is that what’s being recommended?  (And what other options are there, really?)  While I, of course, recognize and appreciate the kind intentions behind remarks like these, all of these platitudes only serve to fuel my anger at the injustice, the ridiculousness, and the absurdity of a very healthy person like my dad getting sick and never getting better.  

So here I am, one year later.  The loss feels different now, and the same.  And so do I.  I know that I am still my dad’s daughter and that all he taught me is right here with me, as he is in spirit, but I am undeniably changed.