The Marker

Before my dad went on ahead, I’d never really considered the way that the birthday of a loved one can transform from something that fills you with anticipation and excitement to something that seems so sad.  It seems so odd to me the way that happens; certainly I still want to recognize and celebrate the birth of one of the most important people in my life, even when he isn’t still here to celebrate himself.  I think for my family, the sense of enhanced sorrow and grief that comes with this week is exacerbated by the fact that it was the same week that he was diagnosed with the brain cancer that took his life only ten short weeks later.  That, as much as his absence, makes it seem counterintuitive to celebrate.

For me, in fact, it feels like salt is being rubbed into a wound, and a lot of the emotions that are usually just hanging out beneath the surface on a typical day seem to be bubbling up and threatening to erupt with the week when everything changed for my dad, for my family, and for me.  The annual marker, which I prefer to avoid thinking of as an anniversary since I tend to think of anniversaries as happy and worthy of celebration, approaches without hesitation and haunts us without regard to our ongoing pain. The week represents such a major shift - an ending of things as they were and an awareness of what should have been.

I long for just one more hour, one more conversation, one more hug, one more anything with him.  I want to push through the pain and focus on the importance of the day of the year on which the man who means so much to me came into this world; the challenge to do so is far greater than I ever imagined it would be. There are so many things that my dad will not get to experience now, things he would so love to be a part of or to know about or to see.  His presence in my life continues to shape me on a daily basis, and I do celebrate that fact as much as the grief will allow. Sometimes though, especially when I can’t avoid the what if, the should have, or the should be kind of thinking pattern, I am overwhelmed by it all, missing him so much that I struggle to move through the ache. The only thing that seems to be of comfort to me when I think about those things is to remember the life that he led that I know he considered to be a great one, to recall the way he was filled with such joy and gratitude, and to recognize the fact that I know if he knew anything at all for certain during the days of his illness it was that he was loved.  Happy birthday, Dad; you are loved and you are missed.

At Least A Thousand Times More

Today is the fifth of the month, and, like the fifth of all the other months that have marked the time since I last spent time with my dad on this earth, it's not an easy day for me.

Every month I wonder if there will ever come the fifth of a month on which I won't feel this way.  I don't think so, at least not for at least a thousand times more or so.

I thought I could make it through the day this time around without writing about my dad or my grief, a new kind of milestone that I feel a weird kind of obligation to reach towards, even though it seems unnatural - and, truth be told, so sad and disrespectful I can't really allow myself to think about it much.  

It's been 30 months.  My god that's hard to believe.  But not as hard as it is not to be able to talk to him except in the format of a one-sided conversation.  

Today I've been thinking about the last time I saw him before we knew he was sick, which was on an extended family vacation in upstate New York.  My husband, my daughters, and I hugged my dad and my mom goodbye as we headed off towards our respective gates at the airport at the end of the trip; I don't specifically remember hugging my dad then, but I'm sure I did.  And I'm sure I thought I would see him at least a thousand times more, with both of us happy and healthy.

I can't help myself from thinking back to things that happened when he was sick, and sometimes the memories and the visions of those things haunt me - like how I used scissors to cut the hospital bracelet from his wrist both times when he came home from the hospital - and how the way I felt when doing so was so completely different on each of those occasions.  The first time, he was still recovering from brain surgery and we were still reeling from the news of the devastating diagnosis and preparing for him to go to Duke for the treatment that we thought would save him.  The second time, we had brought him home on hospice, to save him from the spiraling misery that was going on in the hospital, with hope of a different brand.  The second time, I saved the bracelet after I'd cut it from his wrist; I put it in my purse as if that made sense or a difference in anything that was going on. 

I think back to the packed-up box of stuff from his office, the contents of which would seem meaningless, perhaps junky even, to a stranger but were of exactly the opposite to us in value. I don't know where most of that stuff is now; I guess it doesn't matter, except for when it feels like it does.

I can clearly remember the moments during which the news of the diagnosis was delivered to us, and I remember so well the feeling of hope that the statistics wouldn't, and didn't, apply to him, or to us.  It was as if that Hope was our magic carpet, our oxygen, our blood; to live, we needed to believe that he would live.  I sometimes wish that I didn't remember some of those moments or the rapid decline and the series of let-downs and failures and disappointments from the second and final time that we spent with him in the hospital; that was like being caught in a fishing net, and it forced us to reconsider what we thought about almost everything.  I try to think back to the full weight of the feelings of helplessness, of guilt, of terror, and of powerlessness that crept in during that time, before they were overtaken by resignation and different shades of the previous emotions. But I'm not sure; I think they just gradually took hold of me over the course of the last three weeks of his life, and I have to say I haven't quite shaken most of them yet.

At the end of that trip to upstate New York, my immediate family ended up being stuck at the airport in Albany because of a delayed flight due to thunderstorms across the country; my parents made it out on their flight on time.  After they's gotten home, Dad texted me to check on us and commiserated with me about the inconvenience of the lateness of our adjusted schedule.  "I hope you make it home ok," he texted when I told him that our plane had finally been cleared for take off, the second-to-last time he would text me, ever.  And only five months later, I said goodbye to my dad for the very last time, and, in the early hours of the morning later that night, I laid my head down on the pillow to try to sleep and found myself crying so hard that tears threatened to fill my ears.  I tried to stop but couldn't, and then I squeezed my eyes shut and felt that same message flash from me to my dad:  "I hope you make it home ok," I thought between sobs, and then I added,  "I miss you, I can't believe this whole thing happened, and I don't think I can make it without you" - thoughts that would run through my head at least a thousand times more between then and now.

Ironwoman

I recently read an article about a woman that I find to be very inspiring.  Her name is Kristin McQueen, and here's her story:

Ten years ago Kristin was diagnosed with metastatic thyroid cancer.  Since then, she has had fifteen major surgeries and has undergone various cancer treatments including radiation on her brain.  To date, she has finished seventeen marathons and nine full Ironman competitions.  She has continued to train during her fight with cancer, she says, because when she's out there on the road she is in control, not cancer.  I think that's pretty badass. 

“Ironman is so much more than an endurance race," she says. "It is not about simply propelling myself 140.6 miles for kicks, it’s about challenging my limits and seeing what’s possible. It’s about reclaiming my body after five neck surgeries, two rounds of radiation, ten brain surgeries, and a slew of acquired physical challenges. It’s about not giving into all the limitations that cancer and its buddies have imposed on me, but viewing them as challenges that ultimately make the race even sweeter by overcoming them. It’s about going from not being able to open my eyes without getting sick, having difficulty sitting upright and being too weak to stand by myself to completing one of the ultimate tests of human endurance. It’s about raising money so that nobody else has to go through what I have. It’s about remembering those who have passed and honoring those who fight every day to live a 'normal' life despite a disease that tries to tear them down.”

As anyone who follows Ironman competitions knows, the Ironman Championship is held in October each year in Kona, Hawaii, and participants in the race have to qualify to enter.  It's "the big one," the granddaddy of all triathlons and one of the most rigorous events in sporting.

This year, the World Triathlon Corporation is giving seven athletes the opportunity to race at Kona though a program called Kona Inspired.  Each entrant in the contest has uploaded a 90-second video showing how their story relates to the theme of the contest, which is "Anything is Possible," and those who get the most votes will get to enter the race.  Kristin wants one of those slots.

If you are also inspired by this Ironwoman, here's how you can help, in three quick and easy steps:

1. Watch this video.
2. Vote for Kristin every day between now and May 7, 2013.
3. Share the info on Facebook and Twitter and any other social media feeds you have - and email the link out to others who may not be into social media.  Ask everyone you know to vote for Kristin!

Kristin, sporting a "SUCK IT, CANCER" message during a race

For at least a dozen years before he got sick, my dad always called or emailed me ahead of time to alert me to whenever an Ironman triathlon was coming on TV so I could watch, and many times he called me on the phone during the race so we could talk about it.  Every single time I have watched an Ironman on TV, I have cried.  I don't mind admitting it; I find not only the talent but also (and probably especially) the dedication and just the raw guts that it takes to go the distance so awe-inspiring, but it's the stories of the back-of-the-packers that get me going every time.  Even if you're not an Ironman fan (an Ironfan?), you know the storyline: the thrill of victory, the agony of defeat. I'm not sure which trumps which: the tears of the competitors who realize they will not be able to finish - or the tears of those who are crossing the finish line.  Either way, I can't imagine watching the race without being affected by those stories.

My dad wanted so badly to finish an Ironman competition; just a few days before he got sick - which was just a couple of weeks before his debut Ironman - he said he hoped to finish the event in less than twelve hours but that he would be happy just to finish at all.  After months of training and miles and miles on the road and in the pool, his chance to compete in the Ironman-North Carolina in 2010 was stolen from him by cancer, so unbelievably sad and so damn unfair.  As Kristin says, "Cancer is bullshit!"

Kristin has succeeded in finishing an Ironman - in fact, nine of them!  Most people feel they are giving their all when they finish a 5K, even if they are 100% healthy; Kristin has far surpassed that, while battling cancer. By any standard, she is already an Ironwoman, worthy of great respect and admiration for her athletic accomplishments.  The championship race in Kona, though, is within her reach, and I can't think of anyone who better embodies the idea that anything is possible.  With our help, she can make it there.

Good luck, Kristin; cancer can indeed SUCK IT!  I look forward to watching you amongst the other participants in the race on TV in October.  I can guarantee that I'll be watching - and crying.

Thoughts on The Boston Marathon

I grew up watching, reading, and listening to news about the Boston Marathon; as a runner and a fan of the competitive part of the sport for nearly 35 years, I've always loved following the stories from races for both the top contenders and the back-of-the-packers.  As a current back-of-the-packer myself, I know that every runner has a story, and, especially for big events like marathons, every finish impacts each participant in many different ways.  

The marathon is the apex of the sport for lots of runners, the quintessential goal, the quest of the most dedicated amongst us.  And the Boston Marathon, or "The Boston" or just "Boston," as it is typically called in the athletic world, is the pinnacle of all marathons.  It's the world's oldest ongoing marathon, with this being its 117th year, and it's probably the world's most well-known road-racing event.  Boston is always run on Patriots' Day, the third Monday in April, which, unlike the majority of other marathons in the U.S., means that it's always held on a Monday.  Because of the many hills along the course and the tendency for the temperatures to soar into the 80-degree range during the event, the race is considered to be one of the more challenging marathons in our country.  The Boston Marathon is the only marathon in the U.S. that has a qualifying time requirement for entry, based on the gender and age of each runner, with the general rules stating that a runner must have completed a "qualifying marathon" within an 18 month period prior to Boston.  As a result of the strict qualifying requirements and the difficulty factor, Boston Marathon runners are generally revered by all other runners, or at least by those of us who have been involved in the sport for awhile. 

A masterpiece about Dad's first Boston by my sister, Jennifer

Growing up, I remember hearing my dad talking about Boston as if it were the Holy Grail of running.  Even before he had run it the first time in 1979 at the age of 35, I remember him telling my sisters and me about the course, which runs through eight different towns and finishes on Copley Square in Boston.  In the months leading up to his Boston debut, I remember him worrying aloud about Heartbreak Hill, the most well-known challenge in the race, even after he'd run up and down the levee alongside the Mississippi River literally hundreds of times as part of the 100+ miles per week he ran for months before the race.  I remember my grandfather, my dad's dad, coming to stay with my sisters and me for a few days while my parents went to Boston that April, and I remember my mom calling us after the race to tell us how Dad had done (his finish time was 2:46:04).  I remember standing in the kitchen of our house with my sisters, cheering through the phone line for my dad and then chanting his finish place over and over, so many times that the number was forever lodged in my brain.  In fact, one day, during the time when my dad was sick, we were talking about the many races he had run over the years, and he was surprised when I told him that I still remembered what place he finished in at his first Boston:  1,196th, which put him in the top 15% of finishers that year.

There are around half a million spectators and usually between 20,000 and 25,000 runners at every Boston Marathon.  The Centennial Boston Marathon, held in 1996, which was my dad's second time to run it, set a record for the most entrants, at around 38,000 runners.  

I remember Dad talking excitedly after he'd gotten back from the race the first time about going to the Bill Rogers Running Store and meeting Bill Rodgers, who had won the marathon for the third time that year, setting a course record in the process.  Dad commented that he especially admired the guy, "Boston Billy" as he was called, because of his modesty and his friendliness, which, ironically, were also two of Dad's strongest qualities.  The women's division was won that year by Joan Benoit, then 21 years old, who, with a time of 2:35, bettered the previously set record for women's finish time by 8 minutes. 

Joan, or "Joanie" as she was called, won Boston again in 1983, this time finishing in 2:22, breaking the women's world record by two minutes, and then she followed up by taking the gold medal in the Olympic marathon in L.A. in 1984, the year the women's marathon was established as an Olympic event.  She, incidentally, still holds the record for the American woman with the fastest finish in both the Olympic marathon and in the Chicago Marathon.  Yesterday, Joan ran Boston again to celebrate the 30th anniversary of her most recent Boston win, as did the men's winner from '83, Greg Meyer, who was in fact the last American to have won the race.  Joan, now age 55, was quoted as saying before the race that she planned to "go out fast," aiming to finish within 30 minutes of her winning time from 30 years ago, a goal that my dad would have absolutely loved hearing about - and one that she achieved with a finish time of 2:50.

To Joanie, from my dad and me: you're still a total badass!

Countless people - even those who have never even cared at all about the Boston Marathon before yesterday - watched the replays and read the recounts of the tragedy that unfolded after the bombings, the vast majority of people whom, I would venture to guess, realized that they could not even imagine the chaos and the terror than ensued on the race course and around the city, nor could they really comprehend the emotions  about the losses suffered by the runners and spectators of so many things: life, safety, trust, faith, and even reward for such dedication and effort on the part of the thousands of runners who trained extensively for the race over the course of the last six months or more.  

"To be a consistent winner means preparing not just one day, one month, or even one year - but for a lifetime." ~Bill Rodgers, 1979

"To be a consistent winner means preparing not just one day, one month,

or even one year - but for a lifetime." ~Bill Rodgers, 1979

My brother Lee has qualified for Boston twice and has run it once; he shares in the family's fascination with the marathon's history and with each year's competitive field.  No one in my family was at the Boston Marathon this year; however, on some level, we can imagine the turmoil experienced by those who were there yesterday because of tragic events that have affected us at other races in years past, which is a different story in its own right.  Like everyone else, my family feels so sad for everyone affected by the bombing; there is no understanding the evil that drives such madness.  The term Heartbreak Hill has a whole new meaning for all of the runners there yesterday and for those of us whose hearts go out to those injured and otherwise affected by the malevolence of those responsible.

In memory of Martin Richard 

Big News and a Mission

Something monumentally exciting is about to happen in my family: my youngest sister is about to give birth to her first child, the first baby to be born in our family for many years and an event that is heavily anticipated by all of us.  

Since the end of last summer when my sister told me that she was pregnant, we've all thought a lot about how unfair and sad it is that my dad isn't here on this earth with us to experience the joy that this baby has already started to bring to our family.  Since the moment the big announcement was made, though, I have known that one of the biggest goals I will have as an aunt to this child, whom we have all been calling "our baby" since we learned of his/her existence, is to bring my dad into the life of this child, to teach him/her not only about his/her grandfather but also to impart the lessons and the perspective that my dad shared with all of us.  It's not just a goal of mine, actually, it's a mission: I will pass those things on to our new baby, and I will help him/her to know my dad at every opportunity I get, as will the rest of our family.  

I've heard about people setting up an empty chair or leaving some extra space on a church pew as a tribute to a missing family member during a wedding or other event, to mark a spot for that person who can't be present. In the Labor & Delivery room, though, we won't need a chair for Dad -  not because I don't believe that he will be there, but because I know he will - and I know that he won't be sitting down for any of it.  He will be pacing the floor as he tended to do when he was nervous or excited - and he will be standing right by my sister's shoulder and with an enormous smile on his face as he says to her, "You've got this! You can do it!" as his youngest grandchild enters the world and as his youngest child embarks on her journey as a parent herself. 

Dad, holding newborn Nancy, many years ago

This baby will know his/her Gramps, that's a promise I am making to my dad, to my sister Nancy, and to our new baby.

Remember when you were a kid and you'd run up to Dad with some creation of yours in your hands and say, "Look what I made, Dad!"?  That's what you can say to him about this baby, Nancy, although I think he'll already know.//

The Hospital Bed

I had a dream last night about the hospital bed that my dad was in when he died.  Actually maybe it wasn't that bed; maybe it was just a generic hospital bed.  Oddly, nothing was going on in the dream; it was more like a still photograph than it was like a movie - there were no characters and there was no plot or script.

But that started me thinking about hospital beds and the one that ended up being the last bed my dad ever slept in before he went on ahead.  I think that most people, including me prior to the end of my dad's illness, consider a hospital bed to be a white flag of sorts, a surrender of lots of things, the most obvious of which is one's independence.  The day that the hospital bed was delivered and set up in my parents' house, though, in preparation for my dad's being able to come home from the hospital so that he could spend his last days in a more familiar, more comfortable setting, that bed represented so many other things for my family; it was obviously a consolation of sorts, but one that brought with it the power to give Dad what he so desperately wanted and to release him from the jaws of the downward spiral of pain and anxiety that just kept getting worse in the awful environment of the hospital.  

The bed itself seemed alarmingly flimsy, I thought, insubstantial but sadly adequate to hold my dad's then-frail body.  The frame seemed almost like it was made of wire that was wound together, fabricated without regard to aesthetics, as far as possible from a piece of furniture that would otherwise have been allowed in my parents' house and just sturdy enough to get the job done.  Its defining feature was a rickey little hand crank at the foot of the bed that could be used to adjust the head of the bed up or down.  It was a shitty little crank, really, and thinking back to the cheapness of it makes me both sad and mad - sad for our situation and for the way we had to handle every damn detail in the whole chaotic situation ourselves except for a little help from the hospice company at the very end, and mad for the shittiness of the crank itself: for god's sake, couldn't the insurance company drum up a few bucks more to send us a bed with an electric crank?  Wasn't the situation itself torturous enough without one of us having to use such a rudimentary apparatus, like it was the 1950's or something?  

But we were grateful for the bed with the old-timey crank; we were grateful that hospice had arranged to have it delivered, and we were as grateful as we could be that we were able to arrange for Dad to come home as he had been urgently requesting, actually begging, from his higher-tech bed in the hospital.  

I only vaguely remember the scene of when the guy from the medical supply company came to pick up the bed when Dad was done with it; in fact, I don't even remember if there was only one guy that came or if there were two.  I remember thinking, once they had taken it away, that my parents' bedroom suddenly seemed heartbreakingly empty, even though the hospital bed had only been in there for less than a week and even though my husband and my brother-in-law had moved my parents' king-sized bed back over to the center of that part of the room as it had been before we'd had the hospital bed set up beside it; things we set up like they had been before, but nothing was as it had been.  I remember standing in the space where the hospital bed had just been just minutes before, with tears running down my face, looking down and noticing that there weren't any indentions from the wheels of the bed left in the carpet and wondering how in the world a visible mark hadn't been left where something so big had happened.

At Least

I know a lot of people who are competitive, but I think in some way I am the most competitive of all of them (ha ha, did you catch that???).

Early-onset competitiveness: that's me on the left, totally out-doing my toddler sister and my granddad at pull-ups.

That's why I've never been much of a fan of "at-leasts."  

I think it all started when I was about five years old.  I remember standing in my driveway one day, eating one of those red, white, and blue Bomb Pop popsicles, and being so sad when the last part of it dropped off the stick and fell onto the driveway.  My mom, who'd seen the whole thing happen, said, "Oh, well, at least you got to eat most of it!"  

But I didn't just want most of it, of course; I wanted ALL of it (especially the blue part at the bottom, which I still consider to be the best part!).  And thus began my distaste for the term "at least." 

Growing up, I remember hearing that term used pretty often, way too often for my taste, by both adults and by my peers.   I cringed inside when I heard other people say things like, "At least you tried!" and "At least we got some of what we wanted."  Every time I heard that phrase, I knew I should probably buy into that type of thinking; I realized that it was an expression of optimism and gratitude, but I saw it as settling. 

That has changed, though, since my dad got sick.  I guess going through the experience of caring for him during those ten weeks and then trying to cope with his death over the past couple of years has changed my view on at-leasts; these days I'm actually a pretty big fan of the term.  I hear it from the lips of others who loved him too - and from those who have also who've suffered through a similar experience, and I know we are in a club of sorts whose members know the true meaning of that phrase.  I've never liked consolation prizes, but I guess that's just another example of how tragedy and hardship hammer out perspective.  

I came across an idea shared by a fellow griever yesterday that made me think about my changed feelings for at-least type of concepts.  She said she would rather have had the person she'd lost and had to have suffered through living without him than never to have had that person in her life at all.  How profound.  

Before

There are certain things that went on during the time when my dad was sick that I don't remember, especially during the last couple of weeks of his life when we were all so stressed out, so worried, so confused, so sleep-deprived, and so terrified.  It's like my mind blocked out some of those things, or maybe all of my energy had to be poured into meeting Dad's needs instead of moving things over into my memory bank as he got sicker and sicker.

Sometimes something said in conversation about an event that occurred in those weeks alerts me to the fact that there is some weird amnesia-like spot that seems to have been blocked in my brain.  My kids and my husband and even my friends and coworkers have mentioned things they remember from during that time that I don't. Recently, my daughter was talking about wanting to go back to a restaurant near my parents' house; she said that we had been there while my dad was in the hospital.  I, however, have no remembrance of ever having gone there.  

Sometimes these days a memory from during that time comes back to me from out of nowhere, and other times there is something that triggers that recollection, causing me to flash back to something that happened that I didn't remember previously.  

That's what happened to me yesterday when I was driving in my car and I heard a song come on the radio that caused a memory to come flooding back:

On the Sunday after the memorial service we held in Dad's honor, my husband, my daughters, and I left my parents' house to drive back to our house.  When we stopped at an exit along the way and went into the gas station, there was a song called "If You Get There Before I Do" playing on the overhead speaker.  When I'd first heard it, well before Dad had gotten sick, I'd thought it was one of the saddest songs I'd ever heard, but that was nothing compared to how devastatingly sad I found it to be that day. When I recognized the song, I could hardly breathe.  I made my way outside into the freezing air as fast as I could so that I didn't hear the music anymore and just stood there with tears streaming down my face until my husband and my daughters came back outside.  Maybe they'd gotten used to the craziness that seemed to have become part of me in those days or maybe they didn't notice how upset I was; they didn't say anything about my hasty departure.  I think I mumbled something like, "I can't listen to that song; it's a really sad one," and then we piled back into the car and I put my sunglasses on to hide my tears as we continued down the highway.

The Church Pew

I'm taking an online grief class, and part of the focus of the class is to put together a collection of memories and pieces of information about the loved one who went on ahead.  We have been given a list of fill-in-the-blank style questions to help in the information gathering process; the list includes things like favorite color, favorite subject in school, first job, hobbies, and words of wisdom.  Some of it is easy for me to complete, some of it is hard to remember or to narrow down, and some of it I don't know.  

It's the latter that really upsets me; it makes me think about just how sad it is that many of my dad's stories died along with him.  Luckily, my mom and my siblings can fill in some of the information that I don't know, but, when they have exhausted their repertoire, that's all there is.  And that hurts in a way that I didn't know existed before.

When my dad was in the hospital waiting for the surgery that resulted in his being officially diagnosed with cancer, he was very talkative, around the clock.  Some of what he spoke about were things he was worried about, mainly my mom and his mom.  He chatted about what he hoped to be able to do when he got out of the hospital.  He asked about each of his grandchildren and said he could hardly wait to see them again.  In between these conversations, though, he said a few things that were out of the blue and some that were out of context and maybe even out of the realm of what we could understand.  One of those things he said was that he could see his dad, who had passed away years before, and a man whom he said was his "first preacher" from when he was a little boy and whom he said had a last name of Whitehead.  According to my dad, he could see both of these men sitting at the end of a church pew.  He didn't seem to know what they were doing or what else was going on in that scene, but it did seem to leave him a little unsettled.

Fast forward about 7 months later, after my dad and then his mom (my grandmother) both had gone on ahead, and my extended family on my dad's side had gathered for a memorial service for my grandmother in her hometown in Alabama, which is where my dad grew up.  I asked several of the people who had known my dad as a child, including his brother, if they remembered a preacher by the name of Whitehead, and they all said they did not recognize the name.  The story remains a mystery, and the fact that it probably always will bothers me, a lot.  I wish I could hold onto every bit of my dad that ever was, every memory and every fact, even those that I didn't know yet.  I guess there is a kind of grief for the loss of those things that comes along with the grief of the loss of a loved one, too, yet another thing that I wish I didn't have to know.

Living Strong

We've all heard the expression "Live Strong," especially in the context of fighting cancer. 

Since my dad's diagnosis, though, I've come to view the meaning of this command in a different light, and I see now that it’s not just for the people who have been diagnosed with cancer, but also for those who are caring for them - and even beyond that to those who are left behind to grieve.

By all accounts, my dad "lived strong" during the ten weeks he was battling for his life against the brutal brain cancer that took first his independence and shortly thereafter his life.  He literally fought with all his might until his very last breath.  

I've heard it said that people die as they have lived, and, in regards to being courageous and strong, definitely that was true for my dad.  And, as for my family, I think we've "lived strong" too, working as a team throughout his illness and since then.

In many ways, it's been the "since then" part of this whole thing that I've found to be much harder, but, to honor my dad and the rest of my family, "living strong" has been and continues to be my goal.  

Sometimes I worry that I'm not being strong enough now, though.  

When I was a teenager, I had a t-shirt that had big lettering at the top of it on the front that said "Trackster's Excuse Shirt." Underneath that were listed dozens of excuses that people often used not to run on any given day, things like, "I'm sore from yesterday's workout," "I think I'm coming down with a cold," "I had to work late," and even "It's too cold outside" and "It's too hot outside."  I loved that shirt, and I wore it often.  Dad and I used to make up additional excuses that we thought should also have been listed on the shirt and laugh; there were many days when I didn't especially feel like running but I did it anyway because the shirt helped me to realize that whatever excuse I had was just that - an excuse.  I remember the day I got braces on my teeth; when Dad got home from work that afternoon after I'd gotten home from the orthodontist, he told me to get my running gear on, and I protested, claiming my teeth were too sore to run.  "Oh, really?" Dad asked with a smile on his face. "Should we put that on the excuse shirt too?" Of course, I laughed and then suited up so we could head out the door to run as planned.

Lately I've been thinking that maybe I need a shirt like that, one that lists all the reasons excuses I so easily come up with these days for not running (or for anything else, for that matter): "I didn't sleep well last night;" "I miss my dad too much;" "I'm grieving;" "I'm too busy at work," etc.  

There's no good reason, only endless excuses, and yet I still can't seem to find the drive to do it anymore.  A few years ago my dad gave me a big magnet to put on the back of my car that says "Runner Girl."  I took it off my car more than a year ago; it just felt so disingenuous, and seeing it every time I walked around to the back of my car made me sad.  Sad that I wasn't running, sad that my dad couldn't be.

That's just one of the things that I used to do that I don't anymore, one of the changes that I don't know the reason behind and that I don't like.  I'm honestly not sure if I should grit my teeth and try harder to live strong or if I should just look at it as a temporary thing that I have to go through and go with it for now; I know that some of this is just part of the process - and that some of it is out of my control.

From the time when I was about 12 years old, I always volunteered to pack the car the night before we went on a family road trip.  I liked being the one who knew where everything we might need during the course of the trip was in the car, from a deck of cards to snacks to a box of tissues and a map. 

I think one of the hardest things about dealing with a terminal diagnosis and the grief after the death of a loved one is having the realization that there is no control to be had and that there is no getting prepared for some things in life.  In essence, there is no packing the car the night before in Real Life.

In grief, you spend a lot of time focusing on, well, you.  Grief tends to make us shut out other things at times, not out of self-centeredness but out of necessity.   It is a rough road, one riddled with obstacles, but one with learning and growing and - with time and effort and luck instead of excuses - living strong, to the best of our ability.  We just have to get through it, in our own way.

What I Miss the Most, Today

I recently signed up for an online class that looks at dealing with grief through writing.  This week's assignment is to write about what we miss the most about the person for whom we are grieving.  This is my entry, which is kind of a follow-up to the original What I Miss The Most post from last October ...


I guess the thing I miss the most about my dad is his enthusiasm.  He was without a doubt the most gung-ho (he loved that term) person I've ever known, always motivated and always looking at the glass as half full, and his contagious energy was something that affected everyone in his presence.  That ties into what I have come to realize was the best thing he left to those of us who were lucky enough to have known him: his perspective.  During my life, I observed him so many times in the role of the life of the party, a great conversationalist, and a friend to so many; I always thought he was so popular because he was so much fun to be around.  But after he went on ahead I realized from things that people (some of whom I didn't know even though they knew my dad) told us that it was actually his kindness and his positivity that attracted so many people to him, and I saw how far reaching his genuineness and his perspective truly were.  

     What I wear on my wrist every day to remind myself to try to be positive,
just like my dad 

I am trying hard to emulate that benevolence in my daily life these days, but, in the midst of my grief, I am finding it to be very hard to do so.  I miss my dad and his zeal for life so much that it often makes me angry and/or sad; I know that's just part of the grief process, but it makes me feel like I am not honoring him or carrying on in his footsteps when I can't be as excited and cheerful as he always was.